Early Undiagnosed Symptoms?
I am curious to know whether others with MG experienced early symptoms or had a close relative with a neurological illness?
Many years ago I was told that I have peripheral neuropathy after I started having muscle twitches and a tingling sensation in my lower extremities. Those symptoms have continued to this day, and I take Gabapentin to help control them, especially around bedtime.
Further, my mother was diagnosed as having Parkinson's disease when she was in her early 40's. The disease progressed slowly until she passed away in her mid 80's.
Since I was recently diagnosed with MG, I have been wondering whether my peripheral neuropathy could have been early symptoms of the disease or whether my mother may have passed along a gene related to her Parkinson's disease?
I would appreciate hearing from others who have wondered about such matters.
I apologize for the delayed response. I did come across an article discussing a possible genetic link https://myasthenia-gravis.com/risk-factors. Others in the community have also mentioned experiencing peripheral neuropathy. How have you been doing lately? -Julie (team member) Thanks for asking. Frankly, not very well. My speech and swallowing issues have worsened and my primary care doctor just increased the pyridostigmine bromide from 240 to 360mg daily (which I doubt is going to make a great deal of difference, but time will tell). I have to chew thoroughly in order to swallow, but chewing tires my jaw muscles - so it's "catch 22". I had a follow-up visit with the neurologist who diagnosed me, but it was a complete waste time. His only recommendation was to take my medication thirty minutes before meals (I have been taking it an hour before meals). I may see if my pc doctor can recommend a different neurologist but first I'll give the new higher dose of pyridostigmine bromide a reasonable try. 
sorry to hear you have not been doing very well lately and that you are not completely satisfied with you current neurologist. In case you do decide to pursue a different doctor, I shared an article on finding a specialist which includes a link to a search tool for locating a doctor near you - https://myasthenia-gravis.com/living/finding-doctor-specialists. Please feel free to let us know how the new treatment plan goes. We are here for you. -Jessica (Team Member)
