I have been struggling with intermittent double vision for over a year. I've had several MRIs. First scan showed a white matter lesion, but Neurologist said this is inconsequential and not related to my vision. My Myasthenia blood tests came back negative, but I have responded positively to Mestinon. However, neurologist still won't confirm ocular Myasthenia.
Most confusing is that my legs have stopped working properly. I was exercise crazy, but now I can barely walk around the garden. I've lost my sex drive. I get weird twitches in my arms. However, neurologist literally said 'I don't see any connection between your eyes and your other symptoms'. He's referred me to a neuromuscular clinic (at my request) and he's discharged me. All my symptoms seem to sound like Myasthenia Gravis and neurologist just won't make this connection. I'm so depressed and crying most days. The Mestinon makes me sick, and yet again Neurologist said 'sickness isn't a usual symptom, I've never heard anyone say it makes them sick'.
I'm awaiting the neuromuscular clinic (I've got a 2 month wait), which apparently will 'be dissolved soon and won't be replaced' anyway, so it's only likely I'll see them once. I'll be in a wheelchair if I don't get help soon. What should I do? Thanks in advance.