Dizziness symptoms with ocular MG despite treatment?
Hi everyone, I was diagnosed with ocular MG in 2023 but have been experiencing symptoms since early 2020.
Over this time, I have been on a course of prednisone 2 separate times. While it has significantly helped my eye fatigue, ptosis, double vision, throughout both of these periods I continued to have a low level dizziness and visual motion sensitivity that gets worse when walking around, driving or being in busy visual environments such as grocery store aisles. Tgese symptoms improved somewhat but never seemed to go away despite basically remission of my other symptoms. I’m trying to determine if it is maybe just my brain not adapting properly to the change in function of my eyes or if there is a separate dizziness issue as well.
Has anyone else experienced any persistent dizziness?
I also have omg since 2021. Six week ago I started 20mg prednisone for one week and now at 10mg. My vision is very much improved and also muscle strength but always have a slight head "fog". Not sure if its from the prednisone or the omg. I have been taking Vit. D3 for two months but didn't have it checked. Good luck to you.
(OMG). My dizziness started when I started 20mg prednisone Feb 16, 2026. After three days my double vision subsided a lot and was able to play pickleball abn drive a car. It was so bad before I couldn't even watch tv . Aftera week the side effects were more than I could handle so I was switched to 10mg. I still have some light headedness all the time but am willing to put up with that to have a realitively normal life. I just alway wonder about the future and GMG. I am going to add a history of my omg here. I always wonder how many people like myself had OMG start near the time of covid Fizer "vacine" injections.
I developed double vision in late Summer of 2021 shortly after my second covid "vaccine". It took my neuro ophthalmologist and a blood sample sent to Mayo clinic to determine I have Ocular Myasthenia gravis. Mestinon and prednisone were prescribed but I delayed starting on them. My symptoms would come and go. It wasn't until February, 2026 when it got so bad that I couldn't drive, play sports or even watch tv that I started with 20mg prednisone. Within three days I could resume life although the side effects were bothersome and dosage was reduced to 10 mg. Still with some side effects of prednisone but my vision has improved greatly. My muscle strength is almost back to normal also.
Good luck to you all. Leesyes i have. curiously i was taken to ER because of vertigo which occurred about 6 to 8 months before my MG diagnosis. The vertigo is still present today. up until i read this post i had no idea that vertigo may be associated with MG. Just this weekend i ended up in ER again as a fell down our stairs and the responding physician was discussing balance issues. i have made an appointment with the neurologist in a week. thank you for this discussion, you're great! Do you wany any feedback once I've had my Neurologist Discussion?
thanks for your comment! I just wanted to drop a friendly reminder to check with your doctor or possibly even a pharmacist before adding in any additional supplements or vitamins. With everyone being on different treatments, you want to make sure they will not negatively interact with your current medications. I hope you are doing well and are able to get your vertigo under control. All my best, Julie (team member)
I have visual problems, I'll get dizzy out of nowhere and I have to lie down because moving around makes me dizzier. Getting dizzy affects my balance so moving around is just too dangerous, my balance is just way too compromised. The symptoms coming on makes me just so tired so I have to go to bed to help sleep it off but even that doesn't take care of it completely. It just knocks me off my feet for at least 3 days. This coming on out of nowhere is scary and very frustrating.
