Newly diagnosed with ocular MG
I’m 72 a just diagnosed last November. Still navigating all the information out there. My only symptom is a drooping eyelid right now. My doctor tried IV/IG first. My BP wasn’t under control so we stopped that and started me on azathioprine twice a day. We’re going to try the IV/IG again soon since I’ve got BP under control. I have a really silly question, especially since there’s many things I know I’ll be dealing with going forward that will be be much more serious, and I feel silly asking this, but I haven’t been able to find an definitive answer to this question. Every 3 months I get my roots highlighted, is that something I should no longer do? (See, silly question). So far I haven’t noticed much if any hair loss, but I certainly don’t want to make it a problem. So glad to have a place to ask questions. Thank you all.
Not silly at all. In fact, two clinical studies link hair dye and other cosmetics to flairs in several autoimmune diseases. I could find no clinical studies for specifically MG, but there are a handful of doctor's reports of hair dyes triggering MG crises in their patients. Given the rarity of reports, I would think the risk is pretty low. And your case is pretty mild. I would continue your life as near as possible to normal, just be aware of the risk and watch out for any bad reaction.
Thanks, kind of where my mind was going. Just getting used to how MG will change my life in the future. Right now I see no symptoms other than dry eyes. I am so thankful we found it early!
Thank you for responding! I’m glad to have found this group as I am in the early stages after diagnosis, with only ocular issues. I know I’ll have questions!
welcome to our community, there are no silly questions! Everyone is dealing with various issues, and if it impacts your life in any way, it matters! Unfortunately, I don’t have any advice for you in regard to highlighting your roots, which is a valid concern. If your doctor wasn’t able to provide guidance, I would suggest reaching out to your pharmacist. They’re an invaluable resource and would hopefully know if the dye would interfere or react in any way with the medications you are on. Please don’t ever hesitate to reach out with questions! If it matters to you, it matters to us. We’re here for you! Thinking of you, Julie (team member)
