caret icon Back to all discussions

How do I manage this mysthania ?gravis

Hi
Am ifeoma
I started experiencing weakness in 2010 because I was pregnant I thought it was one of the symptoms of pregnancy.
After birth it continues that I have to see a doctor
Series of test was conducted but nothing was seen.
But my doctor gave me predisolone with folic acid which whenever I take I feel a bit better.
I never know what was wroñg with me until 2017 when my eyelid starting dropping that my left eye closed up, so I have to see an optician and various test was done and I t was discovered that my thyroid hormone is low and I also have mysthania gravis.
Since 2018 I have been taking mestinon and I have become addicted to it that if I don't take it I would function very well.

  1. Hi there, thanks for sharing your story with us. We are so glad you found our community! I can hear your worry and frustration with your reliance on Mestinon but please know you are not alone. Many community members also rely on Mestinon to function in their daily lives. I wanted to share an article about Mestinon with you: https://myasthenia-gravis.com/clinical/examining-mestinon as well as one about all MG treatments: https://myasthenia-gravis.com/treatment. I hope you find this information helpful. Wishing you a gentle day, Kaitlyn (Team Member)

    Please read our rules before posting.