MG Flare

go to bed

I can definitely relate to feeling like disappointed when flareups happen - especially when you've been doing well for a while. Remember to give yourself grace and that healing is not linear. It looks like scribble scrabble. One of the things I find really handy to have on standby is a joy list. It's a list of things ranging from big to small, indoor and outdoor, solo and group things that bring me joy. When I'm in the middle of a flare I take a look at that list and see what's feasible for me to do. Some days it's binge-watching my favorite series from beginning. Other days its treating myself to Starbucks or ordering my favorite meal to be delivered- maybe even scheduling a massage. Sending love and light. Morgan... myasthenia-gravis.com (team member)

Thank you so much for your reply. I guess I just keep trying to press on. But this time my husband keeps saying, "You have to rest." Hopefully I will learn to do that better. And when you said that you had to mourn the loss it was spot on for me. I want to be cheerful and happy for friends and family. But this disease is definitely discouraging and flares are something to mourn over. I really appreciate this support group. Again, thank you so much for your reply.

Gary Linda McGill, there is no easy way to get through a flare. Other than rest lots of rest! I have lived most of my life without a diagnosis or treatment for MG. And have been through many flares. A few crises. With a couple of remissions. It is very hard when you have been doing good then... Bam, you're not!! For me each time it sends me (us, my husband and myself) into a tailspin, for a while. Physically, mentally & emotionally. Each time having to mourn the (new) loss. Hugs & love to you!! Sally Farrier... Myasthenia-Gravis.com (team member).