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I was born in 1956 . There was something wrong with my muscles...my brother had it too...

We were tested for MS and other neurological diseases. We had very heavy eyelids and our eyes did not move. We were diagnosed with MG at the Univercity of Chicago.
Different drugs and combinations of drugs were injected into our veins to improve muscle reactions and eye movement. Eventually Mestinon was developed from these experiments on us.
I am still taking Mestinon. My brother does not. I still pray for remission so I can experience running and doing cartwheels.
Life does not always deliver the gifts we hope for. I can walk long distances. That is a gift. I can see around me by moving my head. That's a gift. Learning to be grateful is the greatest gift of all.

  1. Thank you for your encouragement and timely words. You are correct, walking long distances is truly a gift. I have great difficulty walking🙁

    1. Hi - Echoing Juliana's comment! Thank you for sharing your perspective with our community. Best, Lauren (Myasthenia-Gravis.com Team)

      1. Your last paragraph is an inspiration. Your perspective is also so valuable, over time. Our knowledge of MG changes each year. We now understand more about the genetic predisposition to the condition. Thank you for writing and please keep contributing. Juliana (team member).

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