Ocular mg
I was just diagnosed with ocular mg.im talking pyridositigmine.does anyone get dizzy from it?
I got dizzy when I was on Mestinon but the worst thing that happened to me was leg cramps. I just needed to move my toes slightly when I went to bed and the cramp was so debilitating that I likened it to a footballer whose hamstring was being pulled tighter and tighter. I could not get it to go away and had to wait till it went by itself. They say if you stand on a cold floor or rub your calf but this would not go it just got worse and in the end it was my decision never to take Mestinon again. There is a new medication out after many years of research it has been approved Rystiggo but I haven't looked into it properly and if it is for Ocular or Generalised myasthenia. Lets hope it helps
Thank you
Joseph I was diagnosed with Ocular MG in 2007 Mestinon was given and was completely useless. I asked the Dr to start me on prednisolone and within 6 weeks the double vision had gone I was upping the dose every week until I got to 25mg every other day when and it cleared. I slowly reduced over 6 months until 2mg every other day kept it under control. After 5 years I reduced to 1mg every other day and in 2016 I stopped altogether and it has been clear eversince. Discuss with you Dr. There is light at the end of the tunnel and under supervision Prednisolone is a wonder drug.
Thank you for sharing. Your recovery time is quite stupendous. I hope others will find your story motivating to not give up because light is at the end of the tunnel. It's also great to read that your doctor listened to your concerns and acted upon them in a way that was beneficial for your overall health. - Jazmin (MG team member)
OMG.i went through the same thing.im on Prednisone right now and hopefully it will work.i can't drive or watch TV.unless I close one eye.i hope he finds relief soon.
This has recently started with my eye that droops. It's very difficult to deal with. I have some pain in that eye, it tears up and I've been using a patch part-time to let it rest. That messes my vision up majorly and compounds my reading glass use. Ugh!
