Ocular MG
Hello everyone! I was diagnosed with Ocular MG about two years ago and I hadn't had an episode until a month ago. This is just my second one and it seems to be worse than before. Neostigmine eye drops doesn't seem to be working so I hope that Mestinon will help once I start using it. I have one concern, though, when I currently have an episode. Does anyone wake up with the affected eye much bigger than the normal eye? And as the day goes by, it gets smaller and smaller?
Yanni, I have some swelling to both my upper & lower lid. I used to attribute it all to edema, which I also have as a result of hypothyroidism. My upper lid droops a little, as well as "bags" under my eyes. I've been able to reduce a lot of my edema, including ny eyes, but the swelling, though much reduced, is still there.
The research I've done on this indicates MG causes inflammation, which from my nursing knowledge, tells me swelling is involved, too. As far as me awakening to swollen eyes, sometimes yes, they are more swollen, but it doesnt lessen as the day goes on. Usually rest helps.
Mestinon works well for some people, but it didn't for me. I ended up taking it with prednisone. The prednisone worked about 2 weeks later. I've been off both for a while now & am on another medication that works best for me.
Give mestinon a chance. Just because it didn't work for me doesnt mean it won't for you. If it doesn't, talk to your neurologist about other alternatives. Best wishes! - Janice (Myasthenia-Gravis.com Team) @
