Hello! I was diagnosed with myasthenia gravis almost a year ago. I had slurred speech, difficulty swallowing and chewing, and than after some time my hands would get weak. The anti-Musk antibody came back positive but then my doctor retook the test while I also got treated with steroid and the second test was negative. So now my diagnosis is seronegative -MG..
I would often get shaky legs in the beginning if I stood too much, but soon enough my arms would shake as I moved them, the shaking gets worse with exercise, if I use the stairs my legs would go crazy. My doctor said it could be MG or it could be the steroid so I stopped taking the medicine. Months have passed and no improvement at all. I was wondering if anyone else have shaking while moving or after exercise? I barely have any symptoms beside this. My legs are weak sometimes but that is it, I rarely have difficulty speaking and the symptoms I had at presentation.
Thank you for reading my story and responding, it means much to me!