What symptoms have been the most surprising?
Thinking about your myasthenia gravis symptoms and journey, what symptoms have been the most surprising, or unexpected?
for me it’s been fatigue, dizziness and breathing issues. My OMG is generally well controlled but as the day goes on I get tired on exercise and sweat like a stung pig! Also my o2 sats drop below 94% in the evening. After 12pm I get dizzy spells and I can’t raise my arms above my shoulders during them. Weird! thank you, have told them this for 5 yrs, only this year got tilt table test and was normal. Responses have been eye roll and shrugs as doesn't fit what they want me to be. Very frustrating to be made to feel like what I feel isn't real.
As a singer, my trouble with speech and singing were the most shocking and hard to reconcile for me. When I had flares, I sounded like a different person and it was upsetting. I didn't have enough breath support to keep notes on pitch. It was a scary time and I'm glad that I've found stability now. I am so grateful whenever I can sing again now!
in my case , I was diagnosed in last year .. as per I experienced my first surprised symptoms is slurred speech, dysphagia , earache and fingers down automatically .... After that repeated symptoms .. and my unexpected symptoms was abdominal cramps attack with muscle weakness of lower limb .. I can't forget those days .. 
, I would urge you to talk with your /dr. about getting dizzy after a stool. I am not giving medical advice with that urge. But from my experience it is not normal with Mg. But we are all different and could be for you. I do get that, but I have other medical conditions that can cause that. I do get very constipated before & during flares. I have for over 50 years. I was also diagnosed over 20 years ago with a neurogenic bladder caused by my undiagnosed neurological problem I just got diagnosed with MG in 2020 but have had it for 58 years!! (That was what the urologist told us/me.) That causes difficulty starting (if I can go at all) & incontinence. I ended up with Glomerulonephritis!! Please if you are having troubles like this talk with Dr. again, not medical advice just Glomerulonephritis is not something I would want anyone to experience, it's bad! The last sphincter in both the bowel & bladder is the muscle we can control. This is how we are potty trained. I was told this by an MG specialist!! So yes, MG can cause some of this!!! Hugs to you Cheryl!! Your friend & fellow MGer Sally Farrier...Myasthenia-Gravis.com team member. OMG are we twins ? Why do we get dizzy,like passing out dizzy.I am having painful cramps in the urinary area I cant believe I am being so embarasly open about this.anyone have ideas to help?
