Pam Jajko
Thinking about your myasthenia gravis symptoms and journey, what symptoms have been the most surprising, or unexpected?
Andy C Member
Cheryl Member
thank you, have told them this for 5 yrs, only this year got tilt table test and was normal. Responses have been eye roll and shrugs as doesn't fit what they want me to be. Very frustrating to be made to feel like what I feel isn't real.
Jessica Liao Member
As a singer, my trouble with speech and singing were the most shocking and hard to reconcile for me. When I had flares, I sounded like a different person and it was upsetting. I didn't have enough breath support to keep notes on pitch. It was a scary time and I'm glad that I've found stability now. I am so grateful whenever I can sing again now!
Sanjana Member
Sally Farrier Member
Angel B Roberts Member