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Working with MG

Hi everyone, I was diagnosed with OMG in April and am working full time in office. I am unsure how to navigate having a conversation with my employer about the recent extreme fatigue I have been experiencing. I'm 23 and am working my first job since graduating University in the Fall of 2021. My diagnosis happened during the training days of my work so it was very new at the start of my job.

I'm struggle advocating for myself and I am wondering if anyone has any tips? I want to talk to my employer about possibly working remotely 1 or 2 days a week because getting myself to the office feels like a huge task for me - but I struggle with others thinking I am lazy or faking it...

  1. Hi!! That is a tough question!! Some of it depends on your employer and how well you get along with your boss. First, I would talk with My Dr and have them write something up about your health condition. Just to have if your employer wants documentation to get started. 2nd I would ask for a copy of the file they have on you including the new information of a disability! I would also write down what you want to talk about. (An outline to help stay on task. Along with documentation of what you talked about.) These are important steps just in case your employer turns out to be not so "disability employee friendly"!! I say this from experience. I am including a link for the American Disabilities Act. Best wishes!! Sally Farrier... Myasthenia-Gravis.com (team member.) https://www.dol.gov/general/topic/disability/ada

    1. Hey! I'm also 23 😀 I was diagnosed two years ago. I know many people try to hide their MG from their employers and co-workers. But they also say they run into issues like being reported for being on drugs or drunk and crazy stuff.

      I would think about being straight up with your boss! Whether you share with everyone you work with is honestly a personal choice. But with your boss knowing then, you have no worries about getting in trouble for your symptoms.

      It might sound impractical, but I would also consider how much MG could impact your job or career. I ended up switching careers after graduating with a career path in archaeology. I was realistic that I didn't want to depend on my body doing such a demanding job, not knowing when my next flare or crisis could put me out of work. Just keep your future self and future stress in mind! - Jodi, Team Member

      1. Hi , I know many in our community can relate to the struggle of advocating for one's self and discussing options with an employer. Learning to become your own advocate is something that will hopefully come with time and trying to not worry about what others may or may not think. Unfortunately, sometimes others who do not live with a chronic condition can have a difficult time understanding what daily life entails. Our community gets it and we are here to support you in any way we can. I included a couple articles on MG and work life here - https://myasthenia-gravis.com/working and https://myasthenia-gravis.com/resources-work. I also included an article with tips on speaking to others about MG, just in case it may be beneficial - https://myasthenia-gravis.com/talking-to-others. I truly hope this helps and others weigh in. Sending hugs. -Jessica, MG Team Member

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