My Muscles with Myasthenia GravisOur muscles are funny things. If we don't use them, we lose them. Our muscles have memory and remember how to do things. But when you have myasthenia gravis (MG)... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments2 comments
The Holidays with Myasthenia GravisI remember the busy days of preparing for the holidays. There was always so much to do, but I never gave it a second thought. Between preparing meals, decorating, shopping... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments0 comments
My MG ProgressionMy myasthenia gravis (MG) symptoms first began in 2013. I should say "symptom" because it was only vision issues. I never had a droopy eyelid, and I couldn’t really explain... By Mallory San Nicolas4 min readBookmark for laterReactions 0 reactions Comments2 comments
How To Play Doctor ... Or NotOne of the hardest things about advocating for a patient with a rare disease is the uncertainty of the information that we want to share. Only about 14 in every... By Juliana Texley4 min readBookmark for laterReactions 0 reactions Comments2 comments
Evacuating and Relocating Due to Natural Disasters With MGHurricanes, fires, earthquakes, tsunamis, tornados, avalanches, ice storms, sinkholes, eruptions, flooding, blizzards, and landslides. Natural disasters are devastating phenomena entirely out of our control. I'm located in South Florida and... By Jodi Enders3 min readBookmark for laterReactions 0 reactions Comments0 comments
What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Not Recognizing the Person I See in the Mirror With MGHave you looked in a mirror and not recognized the person you saw? As we watch our physical appearance change, it can damper our mental health. Appearance can affect our... By Jodi Enders3 min readBookmark for laterReactions 0 reactions Comments2 comments
Trying to Stay Positive When Living with Myasthenia GravisOne of the hardest things to do when living with any chronic health condition is trying to stay positive. I was diagnosed with seronegative myasthenia gravis (MG) about 2 years... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments0 comments
Life as a Military Spouse Living with MGShortly after my myasthenia gravis diagnosis in 1995, I married my college sweetheart who was an Ensign in the US Navy. I remember being so concerned that I wouldn’t be... By Claire Denton3 min readBookmark for laterReactions 0 reactions Comments0 comments
When Is It Too Much?Some mornings I wake up and I know right from the start ... today I just need to rest. Now mind you, I do have to take Mestinon every 2... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments8 comments
Furniture for MG WeaknessLet’s talk about living room and dining room furniture since that’s where we spend a lot of time. My husband and I are both tall, as are our children. Low... By Janice Koehn3 min readBookmark for laterReactions 0 reactions Comments0 comments
Surviving Myasthenia GravisWord to the wise, especially for those living with myasthenia gravis (MG) at a young age: Us adults are all just faking it 'til we make it. It’s true. As... By Meridith2 min readBookmark for laterReactions 0 reactions Comments3 comments
My Unexpected Insurance Company AllyMyasthenia gravis (MG) can be scary when you are left by yourself to figure out what is going on. Knowing who to call when you think there is a problem... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments0 comments
How to Approach Gardening When You Have Physical LimitationsI have always loved gardening. I guess you could say "it’s in my blood." I’m a farmer’s daughter originally from Kansas. I pretty much did it all, just like my... By Janice Koehn4 min readBookmark for laterReactions 0 reactions Comments0 comments
Adding a Wheelchair Ramp to Our HomeI don’t have stairs into my house. Well, I do, but they are covered with a wheelchair ramp. I needed a way into the house, so my husband and youngest... By Janice Koehn2 min readBookmark for laterReactions 0 reactions Comments2 comments
Trying to Work After Almost Two YearsAs we all know, myasthenia gravis (MG) is a roller coaster ride that we didn't voluntarily get on, but we're on the ride anyway! Because of MG, I've had several... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments2 comments
You Work at a Restaurant?"You work at a restaurant?" After people learn that I have myasthenia gravis (MG), it's very shocking for them to hear that I am a server. Doctors, nurses, and non-medical... By Shelbie Brown2 min readBookmark for laterReactions 0 reactions Comments0 comments
How I Explain MG to OthersI can start out the day just fine. I'm ready to go as if I didn't have myasthenia gravis (MG), even if it's a day where I'm a little slow... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments4 comments
Managing Safety at Home When Diagnosed with MGA diagnosis of myasthenia gravis (MG) can bring with it a lot of problems. One of those is home safety. There are some things in my home today that I... By Janice Koehn4 min readBookmark for laterReactions 0 reactions Comments2 comments
Minimalizing Has Given Me Energy to Do MoreI have lived in a converted van for 4 months, traveling full time with my boyfriend and 2 cats! We are in the process of working towards a converted school... By Jodi Enders4 min readBookmark for laterReactions 0 reactions Comments2 comments