Tips for Those Newly Diagnosed with Myasthenia GravisIt can require a long journey before you finally arrive at a diagnosis of myasthenia gravis (MG). Having a rare disease can...reactionscomments
The Exhaustion of CaregivingI have myasthenia gravis (MG) and over the past year I have been a caregiver to my husband throughout several illnesses, which...reactionscomments
Could It Be Myasthenia Pain or Something Else?Once you discover you have myasthenia gravis (MG), there is a lot of learning and adjustments to be made. Then just when...reactions2comments
The Challenge of Understanding What Triggers MGSince my myasthenia gravis (MG) first manifested 4 years ago, I’ve tried to wrap my head around how it started, and since...reactions27comments
When to Go to the Emergency Room for Myasthenia GravisPicture this: you’ve got a run-of-the-mill cold, or maybe the weather has been hot, you had a busy weekend, work is stressful...reactions6comments
Should I Wait? When I Know I Need Help and Just How MuchAfter having myasthenia gravis (MG) for almost 3 decades, I have gotten pretty good at knowing when I need to call my...reactions3comments
A Different Kind of PrescriptionWhen I was first diagnosed with myasthenia gravis, I remember thinking that the Mestinon my doctor prescribed would just make all my...reactions22comments
Accepting My Limitations Gave Me FreedomIf there’s one thing myasthenia gravis (MG) brings, it’s limitations: limitations on the capacity for activity, work, and the potential for productivity...reactions7comments
Making Self-Care a PriorityI’ve had myasthenia gravis for almost 10 years now. I can’t believe I’m even typing that. It feels surreal to think back...reactions11comments
Two Steps Forward, One Step Back ... the MG DanceMyasthenia gravis (MG) is sometimes a little like Lucy and the football. You make careful life changes, modify your goals, take your...reactions8comments
Frustrated with Vision ProblemsDo you also have vision problems? With all the stuff that goes on with myasthenia gravis (MG), one of the more frustrating things...reactions6comments
Switching DoctorsIn the first 2 years of being diagnosed I found a doctor who was incredible. He really set the bar high for...reactions11comments
Sometimes We Need Someone to ListenSometimes we just need someone to listen, to be there. Not for offering advice. Not even for consoling us or providing encouragement...reactions4comments
A Long and Frightening Road To a Myasthenia DiagnosisI was diagnosed with myasthenia gravis in December 2008. The long road to discovering the diagnosis wasn’t just frustrating, it was a...reactions12comments
Community Perspectives on MG SymptomsMyasthenia gravis (MG) is a condition that causes muscle weakness. But weakness is not the only symptom of MG. In fact, it...reactionscomments
5 Activities to Try When Recovering from Thymectomy SurgeryAfter my thymectomy surgery, getting plenty of rest and sleep was a soothing and natural way to manage my discomfort. Pain is...reactions1comment
First Crisis very FrighteningI was diagnosed with myasthenia gravis by my quick-thinking GP back in 2016. It was the sight that was my main concern...reactions3comments
Strong Probability I have Myasthenia GravisHello, there is a strong possibility that I have myasthenia gravis. Symptoms started a couple of years ago with strange facial looks...reactions47comments
ConfusedIn 1997, a doctor said I had restless leg symptom. Then in 1999, I had a brain tumor. Another doctor said I...reactions5comments
MG Second Time AroundIn the past, I was on Mestinon and CellCept but not prednisone, since my neurologist knew I was also fighting to keep...reactions2comments