Planning for the PartyThe days are getting shorter. Families and friends will be getting together for picnics and end-of-season celebrations. The continuing threat of COVID makes the option of outdoor social events more... By Juliana Texley3 min readBookmark for laterReactions 0 reactions Comments2 comments
Thanks to Social Media, I Met a Friend With MG in PersonAfter 24 hours in the hospital for slurred speech, a drooping eye, double vision, and overall weakness, I had all clear tests. My frustration was rising with nurses about why... By Jodi Enders3 min readBookmark for laterReactions 0 reactions Comments2 comments
My Experience Taking Mycophenolate Mofetil (CellCept)Just after getting diagnosed with myasthenia gravis, I started taking Mestinon. It quickly made an amazing difference. A few months later, I started into an exacerbation, so my neurologist started... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments6 comments
Managing Vision IssuesFor some reason, double vision is the hardest symptom for me to manage. I say double-vision, but for me it’s more like an intoxicated vision after drinking. It’s been quite... By Mallory San Nicolas2 min readBookmark for laterReactions 0 reactions Comments21 comments
Home Cleaning AidsCleaning your home can be extremely tiring and difficult when living with myasthenia gravis (MG). This is true for me, even when I feel great. What can people living with... By Janice Koehn2 min readBookmark for laterReactions 0 reactions Comments1 comments
Making Self-Care a PriorityI’ve had myasthenia gravis for almost 10 years now. I can’t believe I’m even typing that. It feels surreal to think back on how much I’ve learned since I was... By Mallory San Nicolas3 min readBookmark for laterReactions 0 reactions Comments9 comments
Choosing a Wheelchair, Power Chair, or Mobility ScooterYou’ve checked with your insurance about what durable equipment and mobility aids they will cover for myasthenia gravis (MG). You’ve discussed your needs with your physician. You’ve ruled out walkers... By Janice Koehn5 min readBookmark for laterReactions 0 reactions Comments0 comments
Firing My NeurologistI wrote an article called "My Experience with Doctors and Misdiagnoses" where I talked about how I finally got to meet with a neurologist who was able to figure out... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments0 comments
Obtaining a Mobility Aid and What One to ChooseA mobility aid is a piece of equipment or device designed to help you walk when your mobility is impaired, temporarily or permanently or to provide other means of mobility... By Janice Koehn5 min readBookmark for laterReactions 0 reactions Comments0 comments
The Process of Getting a Handicap PlacardIf you have trouble walking due to myasthenia gravis and haven’t gotten a handicap placard or license plate, you may want to at least think about it. You can get... By Janice Koehn3 min readBookmark for laterReactions 0 reactions Comments8 comments
MG During My PregnancyI get asked a lot by other women who have myasthenia gravis (MG) what it was like for me when I was pregnant. While my story is a little different... By Mallory San Nicolas3 min readBookmark for laterReactions 0 reactions Comments2 comments
MG WarriorI am alone! No one understands what it's like for me. There's that deep pain inside, I just want to cry! The feeling is there and I just want to... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments9 comments
Dressing AidsMyasthenia gravis (MG) causes some of us to feel fatigued all or most of the time. So how do we manage our daily hygiene and getting dressed for the day?... By Janice Koehn3 min readBookmark for laterReactions 0 reactions Comments6 comments
An MG MarriageMy husband didn’t marry me when I was sick. He had no idea what was in store for his or our future when he got down on one knee and... By Mallory San Nicolas4 min readBookmark for laterReactions 0 reactions Comments3 comments
My Thymectomy and MeIt was January 2021, a new year. My first neurologist appointment of the year, my doctor and I decided that the next step was a thymectomy surgery. I was a... By Shelbie Brown4 min readBookmark for laterReactions 0 reactions Comments21 comments
Bathing Tips for MGOne of my biggest problems with range of motion is using my left arm due to pain from the left side of my neck, shoulder, and upper back that radiates... By Janice Koehn2 min readBookmark for laterReactions 0 reactions Comments0 comments
What Qualities Should I Look for in a Doctor?The path to a myasthenia gravis (MG) diagnosis can be exhausting, but finding the right doctor can make a huge impact. We had the opportunity to hear from our patient... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments12 comments
Two Steps Forward, One Step Back ... the MG DanceMyasthenia gravis (MG) is sometimes a little like Lucy and the football. You make careful life changes, modify your goals, take your meds, follow doctors’ orders, and symptoms seem to... By Juliana Texley3 min readBookmark for laterReactions 0 reactions Comments5 comments
What Now?I am so frustrated, I'm not quite sure what to do! It already took 48 years to get a diagnosis of myasthenia gravis (MG) - the entire time there were... By Sally Farrier2 min readBookmark for laterReactions 0 reactions Comments5 comments
Diagnosed During A PandemicMarch of 2020, the country shut down. And at the end of that month, it seemed like so did my body? I began to have a slight eyelid droop for... By Shelbie Brown3 min readBookmark for laterReactions 0 reactions Comments7 comments