Enter Our Awareness Month Giveaway
*This giveaway has closed but we still welcome community members to share their coping strategies.*
In honor of Myasthenia Gravis Awareness Month, we're gifting one lucky winner a copy of Coping with Myasthenia Gravis: Mastering Your Life! From patient perspectives to insights from experienced clinicians to coping mechanisms, this book is a unique resource for those trying to navigate the challenges of living with MG.
To enter the giveaway, answer the following question below: How do you cope with your MG?
The giveaway ends on June 30, 2022, at 11:59 PM ET. The winner will be notified via email. Winner has 48 hours to claim their prize before an alternate winner will be selected. For more information, please read our Terms and Conditions. Good luck!
I agree with most comments, meds on time,eating clean, a lot of water and activities in the am with midday nap or just rest.
Does anyone have a success story in that they got back to life before their diagnosis. I have been optimistic for over a year now but slowly losing that faith that I will return to that life I am just over 50 and was happily finding my Way and trailing a path post my 22 yr marriage. I found so much happiness riding my motorcycle and meeting new people traveling the U.S. I desperately long to return to that life but wonder if I should let go of that goal and try to reach something more attainableI cope with MG now with Plasmapheresis on a once every ten weeks and Soliris every other week they have been life changing for me I've been under really good control on 50 mg a day of generic Imuran but now, I'm seeing double by about 10 PM every night. If I increase my Imuran to 75 mg, I become immunocomprised so I just do all my reading earlier in the day. I also vertigo due to seeing double, so I use a cane to walk in the late evening top.
I try to do whatever I have to do early in the AM----especially food shopping--or Dr appts
