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Does Anything Help Your Double Vision And/or Droopy Eyes?

Do you have Myasthenia gravis symptoms of diplopia (double vision) or ptosis (drooping eye)?

Has anything helped you? Medication, surgery, tape, glasses, contacts, eye drops, etc.?

- Jodi, Team Member

  1. I had tried eye movement for 10 years from 2013 to till date still in the experiment. In 2008 it was difficult/ painful for me to look upward and sideways, now by eye movement looking upward downward this has helped me. My neurologist has stopped all MG medicine and waiting for my eyes to be like normal person by December 2026 . At present my dropping eyelids have gone slightly up , double vision is now clear. and the most important is I did not feel fatigue for the month of September 2025
    I am 62yrs old, diagnosed OMG in 2008 but suffering from age 7 (1970)then of dropping eyelids and from age 14 (1977) of double vision This My Short history Eye movement worked for me and I am better now

    1. My left eye is the one that moved out of line, and dry eye affects it very badly, so I just hold it closed most of the time. Would like to get glasses, but don't know if it is worth the bother as don't know if I can stand to keep the eye open. drops do no good at all, and the vaseline ointments cloud my vision so much it is hardly worth using it. Takes a lot to make my eye not hurt to move. You are advised to not use it a lot, I would need to use it constantly. Meds cause dry eye, search google.

      1. No

        1. I found patches and glasses to be a waste of money and time. Eye lids droop and eyes won't focus because the muscles are too weak. You have to attack the antibody that is attacking the muscles. If you have garden variety MG (ACHR positive), Mestinon (Pyridostigmine) should fix the droop and the focus. A steroid burst might speed the healing process. You need a Neurologist, not an eye doctor. If your neurologist is booked six months out, which is common, any physician can do an ACHR blood test and can prescribe Mestinon and a steroid burst. But keep your neurologist appointment. The Mestinon is a short-term fix, It is treating only the symptoms, not the root cause.

          1. Thank you for sharing your perspective! You bring up some great points
            Jodi, Team Member

          2. I have been struggling with mestinon. No change in my symptoms . But side effects.ie urinary urgency and multiple bms.
            Wake up 3,4 times a night.
            Stopped it 2 days ago. Symptoms relieved.

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