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Does Anything Help Your Double Vision And/or Droopy Eyes?

Do you have Myasthenia gravis symptoms of diplopia (double vision) or ptosis (drooping eye)?

Has anything helped you? Medication, surgery, tape, glasses, contacts, eye drops, etc.?

- Jodi, Team Member

  1. Hi i’m fully cancelled imuran/mestinon treatment with smoking weed for my ocular myasthenia.
    I don’t have double vision for 2years in a row now.
    I don’t recommend any illicit drugs to treat MG, in my case it helps me a lot, THAT’s ONLY MY POINT!!

    1. Hi , thanks for sharing! Glad to hear that you found something that works for you! Best, Allison (Team Member)

  2. I have found through trial and error that wearing sunglasses throughout the day and especially on sunny days or in brightly lit areas helps some. It is just a short term fix. Eventually rest, even just sitting with my eyes closed for awhile, is a must. But I have found that on my more extraneous days that a good pair of sunglasses can help me go a little farther on certain days.

    1. Hey there! Thanks so much for sharing your experience! What budget do you notice the quality of sunglasses generally suits your liking (helps your symptoms)?
      -Jodi, Team Member

  3. The very best help I've found is wearing a weighted eye mask at night. I couldn't stand tape and though my eyes would be too weak to stay so the way open on their own, they would also tear so much they would unstick the tape.
    Someone had a bead filled spa eye mask I started getting cold and using and that helped the symptoms for a bit, but when I trialed a few I found on Etsy for sleeping with (after scaring the crud out of my kids a few times sleeping with my eyes wide open), that really helped. Now, if I wake up and find I lost my mask or it got askew at night I can tell I'll have a harder eye day, but i love this tool for helping.

    1. thank you for sharing! I’m glad the weighted eye masks have been helpful for you. Best wishes, Julie (team member)

  4. I have both double vision and ptosis. I have cold eye masks that are cold packs. When my eyes close, I put the cold(from the freezer)pack on my eyes. Within 5-10 minutes they open. This is just a bandaid to buy you an hour or so before you really need to rest your eyes.

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