How old were you when you were diagnosed with MG?

71 yo male, diagnosed at 62 with ocular. Tried mestinon originally with no benefit. Simultaneously was prescribed high dosages of prednisone (up to 60mg daily if I recall correctly) along with 2500 mg of Cellcept. Followed this regiment for a little over a year, at which time was able to finally decrease the prednisone down to 2mg daily and 2000mg Celcept. Crazy thing while originally taking prednisone was that I actually lost 100lbs from 236 down to 136. No medical reason why was found. Fast forward to April this year, after 8+ years of ocular in control, while enjoying lunch at a local diner, found myself having to stick a finger between my cheeks and gums to extract food that my tongue couldn’t move. This was when I found ocular morphed into general at which time, was put back on high prednisone doses, this time gaining weight. Snow flake doesn’t even come close to defining this crazy disease 😀

I'm 45. Just recently diagnosed with MG. I'm still stunned by the diagnosis. Been stuck in hospital for almost 4 weeks. Still trying to process everything.

It was a journey. My opthalmologist diagnosed me because of problems with a drooping right eye. I was 75. He sent me to a local neurologist who then sent me to Boston to a specialist at Mass General. He started me on oral meds and I V therapy.

66