How old were you when you were diagnosed with MG?
Add any other details you'd like to share!
I was 52 when diagnosed with Ocular MG. I just turned 73. I refuse steroids and Started Vyvgart.
I started in September 2023 and my second series of vyvgart will start 5/20/24. 
Did you see any improvement after the first round?
-Jodi, Team Member
57
On a scale of 1-10, how much of your life was altered with the onset of your MG? -Jodi, Team Member
At 64, thinking I was just having age issues. My eyelids had drooped so much that it affected my vision, so my Eye dr sent me to a plastic surgeon for a lid lift. After his exam, he sent me to a neurologist.
Hi
, wow I don't think I've ever heard of a lid lift. So glad you were able to get a diagnosis! Best, Allison (Team Member)
I was a few weeks shot of 68 yearas old when diagnosed, though in restrospect, symptoms were apparent as18-20 years earlier, just minor and only when tired.
Response 3 - Started on CellCept and predisone. Got approval for IVIG and staerted but had major allergic reaction after 3 treatments. Took months too clear that up.
Then in Summer 2021, had exacerbation which was mismanaged at initial hospital. Two weeks later, got worse and went to different hospital where I ened up in NICU, on a ventilator and then Plex treatments. High dose steroids for several months and now just on 3000mg CellCept daily, no steroids, 30mg Mestinon daily right now.Hi Joe! We are truly grateful that you've found our community and have taken the time to share your MG experience. Your thorough recount is a valuable contribution from which we all benefit. Thank you 😀 If you find the time, we would love it if you shared a bit about your allergic reaction to IVIG in our IVIG complications discussion: https://myasthenia-gravis.com/forums/plex-or-ivig-complications.
How have your symptoms and quality of life been recently?
If you feel up for it, we have a stories page where you are welcome to share what you please for the benefit of others. 😀 You seem like you have much valuable information about living with MG. We would greatly appreciate and look forward to reading more about your journey! Here is the link if you are interested: https://myasthenia-gravis.com/stories/new. Again, welcome to our community!
-Jodi, Team Member
