Ocular myasthenia gravis
Has anyone had an EMG test on their face? OMG
I had an EMG three years ago. It was so painful; I stopped the test. It caused a diplopia flare. I will never have another test like this. I have OMG.
It was Terrible! The doctor said it was the most painful procedure he performs.. It was like someone jabbing you in the face really hard with a pen! I couldn't believe I stayed to the end! I'll Never do that again.
Hi Kaitlyn I'm doing ok. Finally being diagnosed is (for lack of a better word) relieving. Not knowing what type of auto immune disease I have was frustrating. Of course, I'm not happy with the results but at least I know. Hopefully, it doesn't turn in to general MG! They say if it doesn't in 3 years it's very unlikely. Thank you for checking in! Sue
@susan1964 I hear you! Wishing you the best, glad you found our community! - Kaitlyn (Myasthenia-Gravis.com Team Member)
Hi Susan, I have not! What was that experience like for you? - Jessica (Myasthenia-Gravis.com Team Member)
Hi Jessica I'm glad to hear you haven't had an EMG. I'm not sure if you read my prior post but having that test was one of the worst things I've ever done. The electric shocks feel like a pen stabbing you in the face Really hard over and over for about 35 minutes! I had to ask the doctor to hold my head down because I couldn't stop jumping. I'd Never have another! However, I made it through it and now know definitively, I have OMG. Thank you Sue
