CommunityMember5f1e64 Member
I had to undergo EMG test, three times in the year 2008. I was 45.then, MG is a weakness like epilepsy only there is no foamy saliva coming out of the month, the weakness similar. Now I am 62yrs.
I have suffering from the age 7 , only to be confirmed OMG at 45 (200😎.I have started eye movement from 2013 and suggests as I am having better vision. Double vision became clear but my eyes are still dropping
Please my OMG CommunityMember5f1e64
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sharonbaci Member
I had an EMG three years ago. It was so painful; I stopped the test. It caused a diplopia flare. I will never have another test like this. I have OMG.
Susan1964 Member
It was Terrible! The doctor said it was the most painful procedure he performs.. It was like someone jabbing you in the face really hard with a pen! I couldn't believe I stayed to the end! I'll Never do that again.
Susan1964 Member
Hi Kaitlyn I'm doing ok. Finally being diagnosed is (for lack of a better word) relieving. Not knowing what type of auto immune disease I have was frustrating. Of course, I'm not happy with the results but at least I know. Hopefully, it doesn't turn in to general MG! They say if it doesn't in 3 years it's very unlikely. Thank you for checking in! Sue
kaitlynsutton Community Admin
@susan1964 I hear you! Wishing you the best, glad you found our community! - Kaitlyn (Myasthenia-Gravis.com Team Member)
Jessica Liao Member
Hi Susan, I have not! What was that experience like for you? - Jessica (Myasthenia-Gravis.com Team Member)
Susan1964 Member