Plasmapheresis and IVIG
I was 91 years when I was diagnosed with MG. Since then I have been treated with the usual oral meds including prednisone, mestinon, mycophenolate mofetil and infusions of Soliris and currently Ultamaris. My early symptoms of fatigue, generalized muscle weakness have increased . I am more weak, I have a very bothersome head drop, speech and swallowing difficulties.
So far I havenot experienced any crisis. I see a neurologist every 6 months in follow-up. He is encouraging and advises physical therapy and exercise. I keep wondering whether the Ultamaris , which is ridiculously expensive is helping? He has never considered Vivgard?
Carl
Carl, I'm glad you are receiving the proper medications and that they are working well for you. I too am on most of the drugs you mentioned. I have experience every symptom that is described, what could happen did happen, even an MG Crisis. I was in the hospital 4 months, respiratory, I stopped breathing. Praise the Lord, He brought me through it. God bless you, Carl, hang in there, I'll be praying for you.
Hi
Carl, glad to hear you have not experienced a crisis. If we can ever help locate any info related to MG, please reach out. Are you considering physical therapy as your physician has advised? I shared an article on the topic, just in case it may be of interest - https://myasthenia-gravis.com/physical-occupational-speech-therapy. Have you asked your doctor about the medications and your options? In the meantime, I included general information on Vyvgart - https://myasthenia-gravis.com/news/efgartigimod-fda-approval. I also shared an article on treatment options - https://myasthenia-gravis.com/treatment. Wishing you well. -Jessica (Team Member)
