Recently diagnosed
I have been recently diagnosed with mg after 15 years of wondering why I have a wonky eye. When I say A wonky eye,I am referring to my I eyes wandering and double vision. A blood test was the determining Factor for the mg diagnosis. I started Mestonin and immediately was seeing straight . I also have been struggling with leg weakness as well. For years now . Walking up a flight of stairs is a struggle, trying to squat is impossible and I trip on air. So for me the diagnosis was scary and a a relief, having an answer to things that made me feel pathetic. I currently am only taking mastanon twice a day. When I increased it I ended up with severe stomach issues. And really don't like the fact that I am very limited on things that I can take while on that medication. Cold meds nope, ibuprofen nope. The double vision and wandering eye and muscle weakness are still present at times And muscle cramps that are horribly bad.which is a side effect of the the meds. My Nuero doc just wants me to take more Mestonin. Any suggestions ?
welcome to our community, we’re glad you’re here. We understand a new diagnosis can be a lot to process while also feeling a sense of relief at finally getting a diagnosis. For your safety, we are not able to offer medical advice as we are not medical professionals. Everyone responds differently to various treatments, and it can take a good bit of trial and error to find what works best for you. I wanted to share this article on treatment options that I hope you’ll find useful https://myasthenia-gravis.com/treatment. Please do not hesitate to reach out anytime with questions. All my best, Julie (team member) 
15 years probably isn't the record, but it's a long time to get a diagnosis. We all know what you mean when you say you were both scared and relieved. So far, your case is identical to mine in the early years. Mestinon was a wonder drug, but with a limited window of benefit. Two a day is good. I took four. If your Nuero has experience with MG, follow his lead. Mine kept me on Mestinon for about six months to stabilize the symptoms, then moved me onto azathioprine, which eventually ended my need for Mestinon... and the accompanying leg cramps. Your next job is to learn everything you can, because the disease will keep evolving. This site is a wonderful resource for information about MG. So is a book called "Myasthenia gravis: The owner's manual." It's available in both paper and audio versions from Amazon.
