Mac2
My symptoms appear to be mild most of the time until I make a sudden movement - either stopping, turning, reaching quickly, etc. It is then that I may fall down, ram my hand into a faucet or unintentionally stick myself with a knife that was starting to fall from the counter. Some of these instances have caused serious bodily damage.
Is this an odd scenario to others or common?
Jodi Enders Moderator & Contributor
Sally Farrier Moderator & Contributor
Jodi Enders Moderator & Contributor
- Jodi, Team Member
Jodi Enders Moderator & Contributor
Mac2 Member
manlymuffin Member
Sudden movements seem to send me into "symptoms". Glad to read that others experience it. Currently I am working with MAYO clinic in Rochester Minnesota. Several doctors, including eye doctors don't see me having MG......I got new script for glasses and it has helped. (added more prisms) but told me they didn't see any evidence of Ocular MG......but have had the extreme dbl vision followed by falling. So much that I feel and broke my back. My primary Doc is thinking I have a muscle disease.. Currently I am so weak, scared to do anything etc. I go back up to Mayo the 22nd of May for muscle biopsy and other tests.
Jodi Enders Moderator & Contributor
Juliana Texley Moderator & Contributor
Hubby had double vision (a very specific kind that resolves if you close one eye) and fell. (We called it the 10 O'clock flop.)
Wishing you a fast and accurate diagnosis. Juliana (Team member)
Sally Farrier Moderator & Contributor