What is the most effective treatment for MG!
Got diagnosed 5 months ago and was started on 1 tablet of Pyridostigmine a day & now taking 4 tablets daily with 20mg of steroids which has given me severe side effects. Gained 5kg in weight and haven’t slept for more than 4 hours. Saw my neurologist who has started me on Azathioprine 50mg 1
At night and then increase it 2 a day after a month and then 3 times a day and has decreased steriods by 5mg . The mouth muscles go weak after 3 hours and legs are still weak and walking with a crutch .I am disappointed that I am still fatigued and struggle with daily life. How long will this take to b in remission. I am 72 female and have always been very strong. My eyes are blurry in the morning and evening too. I have improved as I managed to eat toast after 6 months and some red meat. I am seeing a neurologist who is a muscle expert next month hopefully he can give me something that would help me to improve and get on with my Life as normal as possible. It all started in March this year and have had some really challenging weeks. Sending positive vibes to all MG sufferer’s.🙏🏽
For me a combination of IVIG and Cellcept has been effective. I still deal with fatigue at times but the debilitating weak feeling muscles in my legs and sometimes arms is pretty much gone. If I’m not careful and do too much or take a muscle relaxer for other issues I can have a flare but a combination of pyridostigmine and Sudafed gets the increasing symptoms in check. I was on steroids for a while at first and it worked for the intense symptoms but I felt like crap most of the time and had the same insomnia issues you described.
my heart goes out to you. <3 It sounds like you have certainly been through a lot. When it comes to remission and MG everyone is different and personalized. Have you had this discussion with your physician? They would be an excellent resource. I shared an article on remission here - https://myasthenia-gravis.com/living/remission. I hope your upcoming appointment proves helpful for you. Please feel free to let us know how it goes and how you are doing in the meantime. Wishing you well. Hugs, Jessica (Team Member)
