Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 6 days ago

anti-musk positive on ELISA, negative on CBA

hi folks, i’m a new member of a club i wasn’t expecting to join. i’m in the middle of the diagnostic odyssey...

Active 7 days ago

Is a wheelchair in my future?

I am 75 with a moderately controlled case of gMG. I can still walk around the house. I can go outside and...

Active 7 days ago

Excessive sweating (Hyperhidrosis)

I've been having a somewhat embarrassing problem. I've always sweated rather heavily when exercising, but since developing MG it's gone to ridiculous...

Active 7 days ago

Weight gain, anybody?

I'm becoming frantic over the fact that I've gained about 15 pounds (~7 kg) since I was diagnosed in January 2022 and...

Active 8 days ago

What came after mestinon & steroids for you?

Did you move from pyridostigmine (60mg) and Prednisone (30mg or so) right to IVIG as your next treatment? Or if not, what...

Were you in remission to then have your MG symptoms return?

Have you been treated for Myasthenia gravis and entered a period of remission, but unfortunately, months or years later, your symptoms returned?...

New member, I suspect MG - please confirm which bloodtest I need?

Dear all I am a new member here. I have had MG symptoms for well over 14 years now but its never...

Seronegative all symptoms/all negative BE and EMG/RNS

Hi everyone, I am new here and also new to myasthenia gravis. I have all negative bloodwork and a negative EMG/RNS. The...

Remission

Has anybody ever heard of a complete remission with all medication being stopped (even Mestinon) and neuroligist confirming that no trace of...

In remission

I was diagnosed with in early 2020 and had a successful thymectomy in 2021. I was initially given prednisone but had severe...

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