Intravenous immunoglobulin treatment (IVIG)
Intravenous immunoglobulin (IVIG) is a treatment option for many people with autoimmune diseases. IVIG can be a treatment for myasthenia gravis (MG).
Have you ever gotten IVIG before? If so, how did you react to it? If you have not received IVIG, please share your thoughts on this treatment and if any other treatments typically work for you.
I had IVIG , it did not lmprove my MG.
I got the IVIG Treatment, I had a Bad reaction to it were I was put on the vent for 4 days. So, differently not for me. And to this day, I have had #384 Plasmapherises Treatment. Once a week.
I. Received IVIG, IT WORKED FOR A WHILE BUT THEN I HAD SIDE EFFECTS OF RASHES. NOW I'M ON RESTIGGO, IT DOES WORK. DON'T GET OVER STRESSED ABOUT THINGS. I WENT Very BACK WHEN MY FATHER PASSED. LEAN ON FRIENDS AND FAMILY. STRESS IS DEFINITELY YOUR ENEMY, AT LEAST FOR ME.
Hi
glad to hear you have found something that is helpful. Sorry for the loss of your father. My heart goes out to you. Stress is definitely something that be challenge to manage and make things more difficult. Do you have any go-to's to help manage stress? Just in case it may be of interest, I shared an article on coping with stress - https://myasthenia-gravis.com/living/coping-with-stress. Please know we're for you anytime. Kindly, Jessica (Team Member) , stress is a Big Problem for me also. And I stay stressed out about everything.
I had blood clots in my lungs after the third treatment. Not much fun. No more IvIG.
I am so deeply sorry you experienced that. You mentioned in a comment on another post that you are back to square one. Is IVIG the only MG treatment you have tried so far? Has your doctor discussed any other treatments with you?
Jodi, Team Member
