Leg and Foot Cramping and Pain
Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night.
Do you experience leg pain? Describe the sensation, and if you note the treatments you are on, that would be great. Pyridostigmine is associated with cramping. But from personal experience, I believed this to cause my leg pain until I stopped mestinon, which has continued. I am sure many of you are the same way.
I look forward to seeing any trends we may note with our community here and our lower body cramps experiences.
Feel free to share any advice you have found for relief 😀
- Jodi, Team Member
I get muscle spasms in my neck, and cramping and spasms in my lower leg and feet. Usually at night as soon as i get into bed and also when i stop an activity. I associate this with muscle fatigue. When i'm rested, i rarely get them.
We have a platform that vibrates. If I don't have my lay on it for 20 min or so I can't go to sleep at least one leg wants to cramp. I think that it might have something to do with lymph fluid. That might be why the vibration helps so much. I was up until 12 last night because I didn't think I would have so much cramping and restless legs. I have to remember to drive lots, and lots of water all day.
As a formerly competitive Pickleball player, there is a way to stop muscle spasms rather quickly. A tablespoon of yellow mustard. I used to just swallow it, but then I discovered I can hold it in my mouth for a few minutes and spit it out and the spasms will still quickly go away. I despise mustard, but I do it regularly because it works, especially when both groins spasm simultaneously and I can’t even walk. I’ve heard pickle juice is also used by some players, but I like that even less than mustard. I hope this helps someone.
My toes curl up and try to touch my knees, especially after a day of heavy exercise. I walk it off. My left hand folds up after two hours of guitar playing. My neurologist suggested a can of Tonic water, which helps.
