Ocular MG? Which Treatment Has Worked Best for You?
Do you have ocular Myasthenia gravis or at one point did before it turned generalized?
What treatment, if any, has helped you see any improvement?
If you had ocular MG that turned generalized, how long did the treatment keep your MG at an ocular level/type?
Pyrodostigmine 1080, mestinon 180 x3 mestinon 60 2 prednisone 10 eod, prisms in my readers, that’s about I take. I seem to be mostly stable these 46 years.
Mestinon
I have been taking Mestinon and so far it is helping and working
Originally started with ocular then moved to generalized
Thymectomy with Mestinon 60mg x 3 a day - lasted approx 2 years then flare ups needed steroids with increased dosage til 75mg weaned down to 15mg for years
Imuran added and well controlled
With 2mg prednisone
20 years on Imuran until terrible effects became an issue
Started low dose naltrexone
Good Mg for 4 years
