Ocular MG? Which Treatment Has Worked Best for You?
Do you have ocular Myasthenia gravis or at one point did before it turned generalized?
What treatment, if any, has helped you see any improvement?
If you had ocular MG that turned generalized, how long did the treatment keep your MG at an ocular level/type?
Meds
General MG since 2015, was on Cellcept and Prednisone x 2 yrs without improvement, azithiopine until liver enzymes elevated for a few months and then cyclosporine x 7 yrs until it affected my kidneys, now on Vyvgart infusion once a week x 4 weeks and am currently off the 6 weeks then start cycle again. Fairly well controlled except for tired daily. Worked part time until 73 now only occasionally.
Male 55, 2nd year with MG.....mostly affects the eyes, sometimes.a.little weakness of arms and legs 2-3 out of 10 with 10 being very weak.
Pyridostigmine 30mg x 3 daily,
Prednisone 10 mg daily,
Magnesium Glycenate 500mg daily (limits cramps/tremors)
I've had no issues eating, speaking, ADL's, etc ......Soliris infusions has helped me the most with all my weaknesses.
