Treatment

Thank you so much, Sally. I'm so glad it's working for you! I realize treatment is somewhat trial & hopefully few error; for me, it's a fear of the unknown. But if there's a chance at feeling better, I'm all in!
Prayers for all of us🙏

I can on share my experience with Cellcept. I have been on it for about 1 1/2 years. We get along fine so far. I did some research and talked with my neurologist. This is what we decided that would work best for me. Unfortunately, many times this is a trial & error thing to find what works best of each individual. And yes, just like most medication the side effects can be dangerous.
But I can tell you from experience that I would rather have the treatment than to go without. Before getting diagnosed I had 1 really bad breathing crisis. Dr.'s did not know what to do and told me to go home and prepare to die. I was totally disabled (bedridden) for 5 years. This last one with diagnosis. 8 months (not bedridden) and had just started medications, after breathing issues started. With the same symptoms as the last bad one.


Although there is no "cure" it does make it more tolerable in my opinion.
Hope this helps. Sally Farrier... (Myasthenia-Gravis.com team member).