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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 4 days ago

"Wrong" Diagnosis for Years?

I was Dx for MG last year. Yet, twice since 2008, I had extreme fatigue and was sent to 2 different Rheumatologists...

Active 6 days ago

When meds don't work

I'm 51 years old and have GMG for 5 years. I was on Ultramiris for 4 years and and had no problems...

FeaturedActive 6 days ago

Unusual MG Symptoms?

Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which...

Active 7 days ago

Newbee found while in MG crisis ccu stay

Help! Just had double bam…MG dx due to crisis. Very close to intubation l. Had 5 IVIG roids wtc. Caveat I am...

Active 7 days ago

MG Patient Registry

https://myasthenia.org/living-with-mg/after-your-diagnosis/mg-patient-registry/...

Active 8 days ago

Ocular MG

I have just been diagnosed with Ocular MG, effects my eyes (double vision) and balance. Anyone ever heard of this or has...

Active 8 days ago

Ocular MG? Which Treatment Has Worked Best for You?

Do you have ocular Myasthenia gravis or at one point did before it turned generalized? What treatment, if any, has helped you...

Muscle and neck pain

Does anyone elsr suffer from muscle and neck pain? I feel the weakness in limbs but the pain really bothers me....

Tips for breathing

Most of my MG symptoms are under control, I do get flares sometimes though. However today I'm having some breathing issues, which...

Propel Clinical Trial

Wondering if anyone is participating in the Propel clinical trial and your results....

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