Suspect Myasthenia...I had a ct scan on my lungs because of a persistent cough. The scan showed atelectasis in both lungs. The pulmonary...reactions3repliesDiagnosis
Seronegative MG...Good Morning! I recently was diagnosed with MG. Going next week to have a scan of the Thymus and discussion after with...reactions3repliesSeronegativeTips & Advice
I'm a Rag Doll...Rag dolls are made out of cloth and slightly stuffed. When you set one down, they just kind of crumple into a...reactions13comments
Dealing with Transportation Issues...One of the things I have found hard to deal with while living with myasthenia gravis is transportation. There are times when...reactions4comments
Newly diagnosed at age 82 ...Since 1997 I've had symptoms which I think have been myasthenia gravis all along but was misdiagnosed with a psychiatric disorder, bipolar...reactions4repliesNewly Diagnosed
CBD and how it is good or bad for myasthenic patients....With sore muscles I would like to use CBD cream. I am concerned that the weak muscles might not respond well. At...reactions4repliesMedical MarijuanaMuscle Weakness
Exercise with Myasthenia Gravis...Have been diagnosed with MG for 11 years. Strongest symptoms showed 2 years ago and hospitalized me. Have engaged in moderate exercise...reactions8repliesExercise
Plasmapheresis cessation ...My wife was recently diagnosed with MG and had a thymectomy two and a half months ago. My expectation was that she...reactions6repliesTreatmentNewly Diagnosed
Preparing for Thymectomy and Hospital Pandemic Restrictions...It has been 6 months since my thymectomy. Woohoo! The pain medications kept most of my time in the hospital a blur...reactionscomments
Prednisone Withdrawal...Prednisone is an anti-inflammatory drug commonly used for its immunosuppressant properties in people with myasthenia gravis (MG). Its role is to manage...reactions11comments
Could It Be Myasthenia Pain or Something Else?...Once you discover you have myasthenia gravis (MG), there is a lot of learning and adjustments to be made. Then just when...reactions2comments
Resolutions and Goal Setting Can Be Intimidating...Here we are into a new year! When everyone else is making personal or professional resolutions or setting goals, I wonder how...reactionscomments
Shining a Light on Photophobia...Myasthenia gravis (MG) patients experience many symptoms. As individuals, we have different symptoms, react to the same situations differently, and medications work...reactionscomments
Seronegative myasthenia ...Does anyone have any input on thymectomy for seronegative MG Thanks...reactions3repliesSeronegative
Special Delivery: Navigating the Maze of Specialists...Like many in this community, my husband’s path to diagnosis and treatment was far from direct. His symptoms began while we were...reactionscomments
Should I Wait? When I Know I Need Help and Just How Much...After having myasthenia gravis (MG) for almost 3 decades, I have gotten pretty good at knowing when I need to call my...reactions3comments
FDA Approves Vyvgart™ (efgartigimod) for Adults with Generalized Myasthenia Gravis...On December 17, 2021, the U.S. Food and Drug Administration (FDA) approved Vyvgart™ (efgartigimod) to treat generalized myasthenia gravis (gMG) in adults...reactionscomments
My Introduction to MG...I am 71 years old and was enjoying my retirement and, up until now, was doing 4-6 hours of heavy gardening/exercise 6...reactions5comments
More Helpful Cooking Solutions for Myasthenia Gravis...In case you missed it, check out part 1 of this article, My Cooking Tips for Myasthenia Gravis. For those of us...reactions1comment
Positive MUSK antibodies, followed by 2 negative tests, then enlarged thymus....I have had strange weakness symptoms on and off for about 10 months. My doctors checked for M.S and a few other...reactions2repliesNewly DiagnosedGeneralized MGThymectomy
