Could It Be Myasthenia Pain or Something Else?...Once you discover you have myasthenia gravis (MG), there is a lot of learning and adjustments to be made. Then just when...reactions2comments
Resolutions and Goal Setting Can Be Intimidating...Here we are into a new year! When everyone else is making personal or professional resolutions or setting goals, I wonder how...reactionscomments
Shining a Light on Photophobia...Myasthenia gravis (MG) patients experience many symptoms. As individuals, we have different symptoms, react to the same situations differently, and medications work...reactionscomments
Seronegative myasthenia ...Does anyone have any input on thymectomy for seronegative MG Thanks...reactions3repliesSeronegative
Special Delivery: Navigating the Maze of Specialists...Like many in this community, my husband’s path to diagnosis and treatment was far from direct. His symptoms began while we were...reactionscomments
Should I Wait? When I Know I Need Help and Just How Much...After having myasthenia gravis (MG) for almost 3 decades, I have gotten pretty good at knowing when I need to call my...reactions3comments
FDA Approves Vyvgart™ (efgartigimod) for Adults with Generalized Myasthenia Gravis...On December 17, 2021, the U.S. Food and Drug Administration (FDA) approved Vyvgart™ (efgartigimod) to treat generalized myasthenia gravis (gMG) in adults...reactionscomments
My Introduction to MG...I am 71 years old and was enjoying my retirement and, up until now, was doing 4-6 hours of heavy gardening/exercise 6...reactions5comments
More Helpful Cooking Solutions for Myasthenia Gravis...In case you missed it, check out part 1 of this article, My Cooking Tips for Myasthenia Gravis. For those of us...reactions1comment
Positive MUSK antibodies, followed by 2 negative tests, then enlarged thymus....I have had strange weakness symptoms on and off for about 10 months. My doctors checked for M.S and a few other...reactions2repliesNewly DiagnosedGeneralized MGThymectomy
Obsessing About Early Christmas Decorating...My Christmas decorating obsession has kept me busy until a few days ago. Then, Christmas, birthday, and our anniversary came along. I...reactionscomments
My Journey with Diets and Learning to Enjoy Food Again...When I was first diagnosed with myasthenia gravis (MG), I started researching diets for autoimmune diseases. Due to my upbringing which valued...reactions2comments
Managing Light Sensitivity With MG...They say that "hindsight is 20/20." In the case of my husband's myasthenia gravis (MG), his sudden loss of 20/20 vision should...reactions6comments
Celebrating Christmas the Myasthenia and COVID Way...The biggest holidays of the year are peaking just around the corner. This will be our second Christmas dealing with COVID-19 during...reactionscomments
it started out of the blue...Has anyone else just suddenly experienced a sensation that one of their hands had been disconnected or somehow unplugged? While the other...reactions7repliesGeneralized MGMuscle WeaknessSymptoms
5 Ways to Gussy Up Mashed Potatoes (When Mashed Potatoes Are All You Can Eat)...Question: When is the worst time of year to have a myasthenia gravis (MG) flare up? Well, there isn’t really a good...reactions1comment
The Importance of Self Care...The past 2 years have been extremely challenging for me and for my family. I was diagnosed with myasthenia gravis (MG) 27...reactions3comments
MG Gave Me Lemons, So I Made Lemonade...Being diagnosed with myasthenia gravis (MG) can be a shock. Not only are you confronted by a condition you’ve never heard of...reactionscomments
UPDATE: Thymectomy surgery...I had my thymectomy surgery Dec 3rd and was released from the hospital the next day. It was a success. Oddly enough...reactions21repliesThymectomySurgeryTreatment
Newly diagnosed with MG...Hello, I’ve only just been diagnosed with MG after months of drooping eyelid and severe double vision. I’m 35 years old and...reactions2repliesOcular MG
