Health Resources...Living with a chronic health condition can be challenging, frustrating, and tiring. You might feel like your life is on hold. Frequent hospital stays, difficult or noticeable symptoms, and constant...
Workplace Considerations...Everyone deserves to be treated fairly at work, including people with chronic medical conditions or disabilities. It is not only the right thing to do – it is the law...
Managing Healthcare Expenses...Managing a chronic health condition can take a financial toll on you and your family. Costs add up quickly from medicines, testing, copays, travel, and more. But help is available...
Disability Benefits...When you have a chronic medical condition, there may be times when you are not able to work. This can seriously affect your finances and your family’s. However, there is...
Applying for Social Security Disability Benefits...Living with a chronic health condition may make working impossible at some point. Your symptoms can affect your ability to get your job done. When this happens, you may find...
Myasthenia Gravis Diagnosis: Still Seeking Answers...We know that myasthenia gravis (MG) affects everyone differently. From the range and severity of symptoms to specific MG triggers, each person’s experience is unique. This can make the diagnosis...reactionscomments
Sometimes We Need Someone to Listen...Sometimes we just need someone to listen, to be there. Not for offering advice. Not even for consoling us or providing encouragement. Sometimes we need to have a sad day...reactions4comments
Communications on the Job...With such a rare condition, do you ask for accommodations or do you simply endure? What accommodations can help you continue to be productive?...reactions2replies
The Need for Myasthenia Gravis Awareness: MG Awareness Month 2021...June marks Myasthenia Gravis Awareness Month. Together, it is time to bring awareness to how it feels to live with a rare disease like myasthenia gravis. Join us in informing...reactionscomments
Managing Flares by Listening to My Heart...The first few months after my myasthenia gravis (MG) diagnosis, I had to quit my job. My vision was consistently double and ptosis made it difficult to stare at a...reactionscomments
Considerations for Driving with Myasthenia Gravis...When the diverse symptoms of myasthenia gravis converge to a diagnosis, the many unknowns can be the hardest part. Chief among them is the question “How will my lifestyle change?”...reactionscomments
Is There Such A Thing As Bulbar Myasthenia Gravis?...Myasthenia gravis (MG) can have wide-reaching effects on the body. This can lead to different symptoms and ways of classifying MG. One term that may be used is bulbar MG...reactions18comments
Take the Person Before Patient Survey...The Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like myasthenia gravis can...reactionscomments
Zach McCallum...When Zach was diagnosed with myasthenia gravis, he was already, as he puts it, “a professional sick person.” Thanks to a primary immune deficiency and a handful of other medical...
Twenty-Eight Years with MG...My symptoms leading up to a diagnosis of MG began while I was driving East on U S – 36 in Kansas in 1993. I suddenly realized my left eyelid...reactions3comments
Managing Flares by Listening to My Body...I am turning 30 this year, which has prompted me to start thinking about what I am taking away from my 20s. There are definitely moments I never want to...reactionscomments
Myasthenia Eyes and the Emotional Toll...The first symptom I experienced was the droopy eyelid. At first, I figured it was from the edema I had experienced for the previous couple of years getting worse. I...reactions29comments
Valerie Sidhoum...Valerie was previously a Health Care leader on Myasthenia-Gravis.com. Dr. Valerie Sidhoum is a Neurologist in Philadelphia. She completed her residency at the Hospital of the University of Pennsylvania where...
What Causes Remission in Myasthenia Gravis?...Myasthenia gravis (MG) is a rare, autoimmune disease that causes a person’s muscles to become weak and to tire easily. The way the disease develops is different for each person...reactions23comments
The Role of Sunscreen for Myasthenia Gravis...As the warmer and sunnier days approach, it is time to be mindful of how the sun’s rays impact our bodies. Some people with myasthenia gravis (MG) are particularly at...reactionscomments
