Dealing with Heat and Hot Weather...If you live with myasthenia gravis (MG), you may have blurred vision and weakness in your arms, hands, face, and legs. You may also experience shortness of breath and fatigue...reactions7comments
Speaking Out for Myasthenia Gravis...What does awareness mean to me? Awareness is knowledge. If you have experienced something, then you at least have a basic knowledge of its existence in the world. Even basic life...reactionscomments
What to Know About Philips CPAP and Ventilator Recall...After many months of investigation, Philips has announced a recall notification for many of its devices. The medical device company analyzed risks related to several products, including: In the United...reactionscomments
Viral Cause?...I've had tests for just about all of the viruses that are common. I had a strong antibody response to HHV-6, but when they did a PCR to confirm an...reactions2replies
Myasthenia Gravis and Brain Fog...Myasthenia gravis (MG) is an autoimmune disease that affects the muscles of the body. The immune system creates antibodies that fight the neuromuscular junction. This is the area where a...reactions13comments
FeaturedNever ever heard of this before...Diagnosed 12 years ago. Just affected my right eye. Took pills - mestonen. 2 years ago started symptoms- weakening, losing weight, until I couldn't really swallow. Then, 2 hospital visits...reactions3replies
My MG...I was lucky enough to be diagnosed with ocular mg in the early stages in 2006 and had my thymus removed. Put on cellcept (allergic to other meds) and steroids...reactions18comments
When to Use Mobility Devices...When myasthenia gravis (MG) hit me, it smoldered along for the first year or so. I had some episodes of blurry vision, I was assured were migraines. The leg and...reactions15comments
My Life is Changed !!!...Hi everyone 👋 I was former ICU staff nurse. In those 4 yrs of experience of my work is awesome ...yes, I was healthy n fit. I have never been...reactions10comments
CellCept (Mycophenolate) and Myasthenia Gravis...Editor's Note: CellCept is used off-label to treat myasthenia gravis. Talk to your doctor about the risks and benefits of this treatment.CellCept, also known as mycophenolate mofetil, is a medication...reactions3comments
FeaturedFor the newly diagnosed...Being diagnosed with any condition can be challenging. Being diagnosed with a chronic autoimmune disease might feel impossible at first, but the good news is that it’s not impossible and...reactions3repliesNewly Diagnosed
Myasthenia Gravis Awareness Starts With Me..."Myasthenia what?" Upon telling anyone I knew about myasthenia gravis (MG), I would often have to repeat the name multiple times, explaining what this foreign diagnosis meant. To simplify it...reactionscomments
Difficulty Breathing: One of Many Symptoms with MG...I’ve already discussed one of the first symptoms I had when this disease reared its ugly head. You can read about that in the article, Myasthenia Eyes and the Emotional...reactions17comments
Never Been Sick...I have always been very healthy. Never sick, didn't even take an aspirin. On Friday, 2/12/21 I had my first Moderna COVID shot. On Sat. I had a sore arm...reactions15comments
Managing Flares by Listening to My Mind...What goes on in your head all day? If you’re like me, maybe you have a constant to-do list running in the background, critical of any lazy moment. As I...reactions1comment
Helping Others Understand Myasthenia Gravis...Being a member of a small minority might seem special. But when that minority represents individuals with a rare disease, the challenges are enormous. That’s certainly true with myasthenia gravis (MG)...reactions4comments
Frequently Asked Questions (FAQs) About Myasthenia Gravis...Whether you are living with myasthenia gravis (MG) or know someone who is, here is a guide to the basics of MG. Myasthenia gravis is a chronic autoimmune disease. Autoimmune...reactionscomments
Health Resources...Living with a chronic health condition can be challenging, frustrating, and tiring. You might feel like your life is on hold. Frequent hospital stays, difficult or noticeable symptoms, and constant...
Workplace Considerations...Everyone deserves to be treated fairly at work, including people with chronic medical conditions or disabilities. It is not only the right thing to do – it is the law...
Managing Healthcare Expenses...Managing a chronic health condition can take a financial toll on you and your family. Costs add up quickly from medicines, testing, copays, travel, and more. But help is available...
