Stories

I've got ocular MG (confirmed by serology in Jan 2023) and have had several flare ups over the past year and a half during which my symptoms (particularly diplopia) are...

Hi, everyone! I’m 70 years young, a Mom of 3 sons and Grandma of 5, ranging in age from 2-year-old twins to my oldest granddaughter, a senior in high school...

In the past, I was on Mestinon and CellCept but not prednisone, since my neurologist knew I was also fighting to keep my blood sugar levels down as well. I...

I was diagnosed November 2023 but didn’t see a neurologist until April. She put me on prednisone, but it hasn’t helped. My eyes are so painful. My left eyelid drops...

My father died in 1968 at age 72 from MG that was discovered by autopsy. He was unable to swallow any solid food and had great difficulty with liquids. He...

I was diagnosed with myasthenia gravis by my quick-thinking GP back in 2016. It was the sight that was my main concern. I was anxious about not being able to...

In 1997, a doctor said I had restless leg symptom. Then in 1999, I had a brain tumor. Another doctor said I had fibromyalgia and I was prescribed medication. Then...

Seventeen years ago just after I turned 40, I started experiencing symptoms of ocular MG that has never progressed to general. I'm seronegative, which led to a year between onset...

I'm going to do my best to tell what my journey has been so ask questions if you need to. I'm 77 years old. Oct 2020 my left eye drooped...

I submitted a story in January about being angry and sad due to losing my independence. I mentioned I read everything I could find on Google and joined every organization...

Hello, my name is Robert and although my MG was confirmed 18 months ago I now realize it had been coming for four or five years. It started with double...

I was a newbie. Just diagnosed in March of 2021. I was put on Mestinon and started my birthday trip to several cities in early July. As it began, my...

I was 28 at the time I started getting weak and falling. All the doctors I saw had no idea of what was wrong. The first doctor I went to...

My name is Grady. I was diagnosed with myasthenia gravis four years ago. This past year, 2023, I began noticing that my MG symptoms were becoming worse. My eyes were...

I am writing in sadness but with the intent of expressing hope for all those who have been diagnosed with MG. I do not have myasthenia, but I had a...

I was diagnosed with MG in March of 2021 but knowing what I know now, I probably had this disease years before. When I was first diagnosed, I had no...

Some years ago I started having a problem seeing. One of my eyes was crossing and I could not focus or see properly. I thought it would correct itself in...

I was diagnosed with gMG in 2013. I was given Prednisone which gave me thoughts of suicide. I was also given Mestinon which has left me with constant muscle fasciculations...

Myasthenia gravis had been a background disease for a good portion of my life until I was roughly 45. I sometimes wonder if menopause was the trigger. The last summer...

I was diagnosed with MG in 1969 at the age of six. It took forever to figure out what was wrong with me. I would just fall down while I...