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what is the best way to deal this?

newly diagnosed,what can I expect in the future?

  1. Hello welcome to the community. I hope you were able to read some of the articles shared. There's so many answers to the question you're asking and everyone will experience MG in their own way. I was diagnosed with MG at 17 and I'm 28 now. It's definitely a whole life style change. When and if you go through a flair up you'll have to find an alternative to the way you do things. One thing that helped me was keeping a journal of the activities/chores I do in a day and referencing how each task made me feel energy wise after and how long it took me to do them. A medicine entry log if you take a lot of different types of medicine. PATIENCE. You'll have to be patient and don't beat yourself up when you're unable to do something. Resting is your best friend. Take time out of everyday to rest. Educate yourself and make you have a doctor that you can verbalize you wants and concerns in order to find a plan that best fits your needs. Please share anything you may be experiencing. I'm sorry if my response seems all over the place and doesnt really cover everything. You're not alone in this and we are here to support you. - Jazmin (team member)

    1. Hi there, we are so glad you have found our community. We have a lot of great resources for those who are newly diagnosed and I will share them below but to answer your question about what to expect in the future I thought you might want to start with reading this article: https://myasthenia-gravis.com/life-expectancy. Here are some other articles I hope you find helpful: https://myasthenia-gravis.com/living/newly-diagnosed-tips, https://myasthenia-gravis.com/living/newly-diagnosed-advice, https://myasthenia-gravis.com/living/connection-support. Please let me know if there is any specific information I can help source for you! - Kaitlyn (Team Member)

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