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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 4 days ago

Ocular MG? Which Treatment Has Worked Best for You?

Do you have ocular Myasthenia gravis or at one point did before it turned generalized? What treatment, if any, has helped you...

Active 6 days ago

Surgery for your eyes

Has anyone gotten surgery on the eye muscles because there isn't enough prism to take care of double vision?...

Active 6 days ago

MG and Hypogonadism

I have both Ocular MG and Hypogonadism -- I take Testosterone topically every day. Just wondering if anyone else has both, and...

Active 6 days ago

Conflicting Dx about MG

Hello there, I have seen two neurologists for the condition that I have. My leg muscles (especially on my right leg) get...

Active 8 days ago

Has anybody heard of MG just dissapearing and no medications being taken or required not even Mestinon

MG just miraculously dissaperaing like remission...

New treatment (experimental?) Rystiggo

rozanolixizumab (brand name RYSTIGGO) Has anyone had any experience with this? I’m not questioning the validity of the trial, simply any after...

Dizziness symptoms with ocular MG despite treatment?

Hi everyone, I was diagnosed with ocular MG in 2023 but have been experiencing symptoms since early 2020. Over this time, I...

Toll Prednisone Took on Your Body

What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning...

Drugs for MG

Hello everyone, I have been taking Mestinon and having bad leg cramps and muscle twitching over night. Has anyone else experienced this...

What Are The Alternate Medicines and/or Treatment Regimens

Please post any of the Alternate Medicines, and/or Treatments Regimens...

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