UPDATE: Thymectomy surgeryI had my thymectomy surgery Dec 3rd and was released from the hospital the next day. It was a success. Oddly enough I am a lot more mobile than I...Reactions 0 reactions Comments21 repliesSurgeryThymectomyTreatment
new medicationLooking for info on MH patients that are using Ultomaris...I understand this is a new medication for MG and looks very promising....thoughts? side effects? Mu husband has occular MG which...Reactions 0 reactions Comments7 repliesTreatment
Thymus glandDo i have to be removed even if it isn't bloated? I have a breathing disorder, and the doctor tells me that it can only improve by 30 % if...Reactions 0 reactions Comments4 repliesThymectomyTreatment
Plasmapheresis cessation My wife was recently diagnosed with MG and had a thymectomy two and a half months ago. My expectation was that she would be on medication to control symptoms from...Reactions 0 reactions Comments6 repliesNewly DiagnosedTreatment
Mother newly diagnosed with MGHi everyone, I am new to the forum and are from the Middle East, and looking for support and feedback. We My mother is 70 years old and she was...Reactions 0 reactions Comments9 repliesCaregivingTips & AdviceTreatment
Vitamin DI have read that a high dose of Vitamin D has a good effect on persons suffering with MG although not proven? Has anyone have any advise on this or...Reactions 0 reactions Comments6 repliesTips & AdviceTreatment
VYVGARTHas anyone started the 4 week treatment? Side affects?...Reactions 0 reactions Comments2 repliesTreatment
mg diagnosis or misdiagnosis?after trouble swallowing then muscle fatigue in the legs and neck and shoulders it took 2 years for some kind of diagnosis. j After blood tests showed no acetylcholine receptors...Reactions 0 reactions Comments4 repliesDiagnosisTreatment