Just diagnosed
After advocating for myself, I was just contacted by my Dept of Veterans Affairs primary care and neurologist...30 minutes ago...on a Saturday. They both expressed that they were sorry they didnt diagnose me sooner. My biological mother and grandmother both had it, passed away last year. Unfortunately I have 2 TBIs sustained in combat a few years back. I am 44 years old. I have been a paramedic for 26 years. Advocating for myself and pushing for blood work turned out great. Any advice for a newbie would be wonderful.
Thank you so much. Its good to known I'm not alone. I really appreciate the help.
Your story is, unfortunately, very common. I would guess that the majority of MG sufferers had to diagnose it themself and insist on the blood test. You should be immediately prescribed pyridostigmine, probably four times a day. If you have garden variety MG, it will make an IMMEDIATE difference. Your doctor may also consider a steroid burst and an immunosuppressant. There is no cure, but MG can be well controlled through a regimen of meds. It sometimes takes a long time to get full control. Be patient. But be confident that you WILL get better and usually quite rapidly. Best of luck and thanks for your service.
