Hand swelling and tingling I am in the middle of an MG Crisis. In 10 Days I will start my second series of Vyvgart. I am wondering if anyone has had hand swelling and...Reactions0reactionsComments4 repliesGeneralized MG
MedicationsDoes anyone have experience with medications that exacerbate their condition? I have congenital myasthenia which is genetic and not auto immune, so my experience is probably a bit different than...Reactions0reactionsComments2 repliesGeneralized MG
Ocular to Generalized Myasthenia GravisCommonly, the first symptoms of Myasthenia gravis experienced, and possibly the only MG symptoms for years, are double vision or drooping of the eyes, referred to as ocular MG, https://myasthenia-gravis.com/ocular...Reactions0reactionsComments18 repliesOcular MGGeneralized MGNewly Diagnosed
Safe Cold products to use with gMGI am coming down with a cold. My nose is running non-stop. What over the counter meds are safe and work with gMG?...Reactions0reactionsComments3 repliesGeneralized MG
Plasma Replacement TherapyHi everyone Pete from the UK here - 70 years of age. I've had double vision since 2016 but recently developed ptosis. Finally been diagnosed with MG and now have...Reactions0reactionsComments3 repliesGeneralized MGAutoimmune DiseasesNewly Diagnosed
Getting GP to take me seiouslyWe all know that GP face to face appointments are like gold dust but sometimes I really need to be seen any tips ?...Reactions0reactionsComments3 repliesGeneralized MG
What is myasthenia gravis?What are some tips to help me with myasthenia gravis?...Reactions0reactionsComments1 repliesAwarenessAssistive DevicesGeneralized MG
Happy Hypoxia/silent Hypoxia or similarJust wondered whether anyone has experienced regular low oxygen levels 94% and under without feeling particularly or overly distressed or breathless as can be seen in COPD or similar respiratory...Reactions0reactionsComments0 repliesSymptomsGeneralized MG
DietIs there one basic recommended diet for patients with gMG? Especially for fatigue and brain fog? Thank you...Reactions0reactionsComments1 repliesDiet & NutritionGeneralized MG
Breathing problemsI'm a 47 year old male and I was diagnosed with the dok7 variant of congenital myasthenia about a year ago. I've been symptomatic for a few years, but all...Reactions0reactionsComments1 repliesDiagnosisAssistive DevicesGeneralized MG