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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Your Experience Terminating Being Under the Care of a Doctor

Many of us have had at least one healthcare professional that we quit going to see because we believed they didn't provide quality care, listen, be respectful, be thorough, educate...

Azathioprine (Imuran)

Hello, I am newly diagnosed as of November '22. I am responding well to Pyridostigmine, with speech and swallowing problems greatly reduced. Now my neurologist wants me to take Azathioprine...

Featured

Vyvgart

Did anyone get the new Vyvart infusion yet? My dr wants me try to try it but had flair after 13 yrs with no symptoms until Feb of this year...

Cure or Relief

Recently (to me) CBS News released a segment on Tzield; a new medication recently approved by the FDA for some level of relief of Type 1 Diabetes. It was clear...

Been ghosted by my neuro's PA

Early this year, just before I got my monthly shot in the eye, I mentioned to my retina specialist that my left eye would suddenly go droopy and I would...

MG and Homeopathy

Hi, I'm very freshly diagnosed and trying to educate myself on the illness. Very grateful for this group and for technology, I live in Greece.. I have a question. Has...

UPDATE: Thymectomy surgery

I had my thymectomy surgery Dec 3rd and was released from the hospital the next day. It was a success. Oddly enough I am a lot more mobile than I...

new medication

Looking for info on MH patients that are using Ultomaris...I understand this is a new medication for MG and looks very promising....thoughts? side effects? Mu husband has occular MG which...

Thymus gland

Do i have to be removed even if it isn't bloated? I have a breathing disorder, and the doctor tells me that it can only improve by 30 % if...

Plasmapheresis cessation

My wife was recently diagnosed with MG and had a thymectomy two and a half months ago. My expectation was that she would be on medication to control symptoms from...

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