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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Pyridostigmine (Mestinon) Shortage in UK

You may be among the many frantic over the pyridostigmine (mestinon) shortage in the United Kingdom. --- How has this affected you? Has your doctor adjust your treatment to accommodate?...

Immunotherapy (stem cell)

Does anyone have experence treating autoimmune MG with immunotherapy (stem cell) treatments simular to what is used in cancer treatment? I am 41 years old and have been recently diagnosed...

Highest Steroid Dose You’ve Been Prescribed

What is the highest steroid dose you have been prescribed for Myasthenia symptoms? Did a doctor order this after you were in a crisis or significant flare? Have you been...

Do You Have a Preference of Older or Younger Doctors to Treat MG?

Do you prefer a young or older healthcare professional to treat your MG? Age by no means determines how much knowledge or skill a doctor offers. And an individual could...

Soliris (Eculizumab) Outcome & Side Effects

Eculizumab (Soliris®), https://myasthenia-gravis.com/biologics, is a Myasthenia gravis treatment approved for generalized myasthenia gravis (gMG)(https://myasthenia-gravis.com/generalized) & anti-acetylcholine receptor (AChR) antibody-positive (https://myasthenia-gravis.com/causes). Have you been treated...

What Main Quality Do You Look For in a Doctor

When aiming to find a doctor that feels like a good fit, we must remember that health professionals are human and not perfect. Some have so much on their plate...

Low-dose naltrexone

Hello everyone There's someone here who has heard of or is taking LDN ?...

Your Experience Terminating Being Under the Care of a Doctor

Many of us have had at least one healthcare professional that we quit going to see because we believed they didn't provide quality care, listen, be respectful, be thorough, educate...

Azathioprine (Imuran)

Hello, I am newly diagnosed as of November '22. I am responding well to Pyridostigmine, with speech and swallowing problems greatly reduced. Now my neurologist wants me to take Azathioprine...

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Vyvgart

Did anyone get the new Vyvart infusion yet? My dr wants me try to try it but had flair after 13 yrs with no symptoms until Feb of this year...

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