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Read conversations, start a discussion, and connect with others about myasthenia gravis.

NEW APPROVED MG TREATMENT for Gmg - Vyvgart Hytrulo

Super exciting!! The FDA has just approved Argenx’s subcutaneous injection (given in the fatty tissue just under the skin) formulation of efgartigimod...

Gabapentin and Myasthenia Gravis

Gabapentin (Gralise, Horizant, Neuraptine) is deemed cautionary with Myasthenia gravis, as it can potentially worsen symptoms. Gabapentin is used to treat seizure...

How Long Have / Did You Experience Discomfort After Thymectomy?

It has been almost 2 years since my transsternal thymectomy. I had a good amount of pain afterward, toward my stomach, sides...

Pyridostigmine (Mestinon) Shortage in UK

You may be among the many frantic over the pyridostigmine (mestinon) shortage in the United Kingdom. --- How has this affected you?...

Immunotherapy (stem cell)

Does anyone have experence treating autoimmune MG with immunotherapy (stem cell) treatments simular to what is used in cancer treatment? I am...

Highest Steroid Dose You’ve Been Prescribed

What is the highest steroid dose you have been prescribed for Myasthenia symptoms? Did a doctor order this after you were in...

Do You Have a Preference of Older or Younger Doctors to Treat MG?

Do you prefer a young or older healthcare professional to treat your MG? Age by no means determines how much knowledge or...

Soliris (Eculizumab) Outcome & Side Effects

Eculizumab (Soliris®), https://myasthenia-gravis.com/biologics, is a Myasthenia gravis treatment approved for generalized myasthenia gravis (gMG)(https://myasthenia-gravis.com/generalized) & anti-acetylcholine receptor (AChR) antibody-positive (https://myasthenia-gravis.com/causes). Have you...

What Main Quality Do You Look For in a Doctor

When aiming to find a doctor that feels like a good fit, we must remember that health professionals are human and not...

Low-dose naltrexone

Hello everyone There's someone here who has heard of or is taking LDN ?...

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