Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 6 days ago

What are your go-to home hacks for conserving energy with MG?

From using adaptive tools in the kitchen to reorganizing daily essentials so they’re within easy reach, we all develop our own strategies...

Active 6 days ago

Ocular MG? Which Treatment Has Worked Best for You?

Do you have ocular Myasthenia gravis or at one point did before it turned generalized? What treatment, if any, has helped you...

Active 6 days ago

Congenital myasthenic syndrome

I'm a Brit in my mid-seventies living in Germany and have had CMG for the past 35 years. CMG means that I...

Active 6 days ago

MG Anti Musk

My father's ventilator weaning is not happening since 45 days. Ivig just completed...

Active 7 days ago

Side Effects From Pyridostigmine(Mestinon)

Have you experienced any side effects from the MG treatment Pyridostigmine, commonly called Mestinon? This article on our website, https://myasthenia-gravis.com/treatment/ache-inhibitor, discusses the...

Just Diagnosed 9 days ago.any advice on bowel management /frequency /diet on Montinon?

I now wear depends as a precautionary measure, as i always have urgency,especially after a meal sometimes during sleep.i am tired of...

Just Starting

I am just starting this journey with feeling huge weights holding my thigh muscles and upper arm muscles down, trouble catching my...

Depression-anxiety

MG makes me tired then I have Depression-anxiety which that medication makes me tired so im tired all the time Anyone with...

Rate the Order in Which These Life Aspects Are Affected by MG

Rate the order in which the following aspects of your life are impacted by Myasthenia gravis, 1 being most affected by MG...

Financial Assistance Available Through The National Organization for Rare Diseases

NORD is a non-profit organization. This is from their website. "We provide patient assistance programs to help individuals living with rare diseases:...

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