Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 3 days ago

slow down and take it easy, worrying will not help you only make you worry more

after 2 years ( age 71 right now) i had plenty of plans at retirement. Most of them are on hold, probably...

Active 4 days ago

slurring of speech

My husband was getting infusions and all of a sudden they switched him to a different med and in a few days...

Active 6 days ago

Severe back pain during infusion

I have been taking Vyvgart for a year now and it has been working really well. However, during my last infusion, i...

Active 6 days ago

Diagnosed-treated-3+ years/ Informed I was misdiagnosed

After being treated for double seronegative for 3+ years, I have now been referred to back to my hematologist for anemia issues...

FeaturedActive 7 days ago

Does Anything Help Your Double Vision And/or Droopy Eyes?

Do you have Myasthenia gravis symptoms of diplopia (double vision) or ptosis (drooping eye)? Has anything helped you? Medication, surgery, tape, glasses...

Active 8 days ago

Definition of seronegative MG

Does a negative antibody test mean you dont have MG? I still have lots of symptoms and the Pyridostigmine really helped, but...

Is anyone experiencing syncopal( fainting) episodes?

I have Myasthenia Gravis, I'm 10 months post Thymectomy, currently on IVIG 2 days every other week waiting on a clinical trial...

Leg and Foot Cramping and Pain

Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night. Do you experience...

anti-musk positive on ELISA, negative on CBA

hi folks, i’m a new member of a club i wasn’t expecting to join. i’m in the middle of the diagnostic odyssey...

Seronegative all symptoms/all negative BE and EMG/RNS

Hi everyone, I am new here and also new to myasthenia gravis. I have all negative bloodwork and a negative EMG/RNS. The...

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