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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Myasthenia Flare?

I currently have ocular myasthenia. Thursday I ended up at the ER. My mouth was moving weird, my vision impaired, difficulty swallowing and walking. When doing a CT Scan, I...

MG Terminology

I bet we all remember the first few years after being diagnosed with Myasthenia gravis and constantly finding new MG-related terms we were unfamiliar with. Many of us are still...

Tinnitus

I have tinnitus which coincidentally started about the same time my other neurological issues did. Have others had this same problem and if so, has your neurologist said it was...

Seronegative diagnosis and two rare genetic diseases

I’ve tried posting as a status and it it’s won’t go. It’s been a really crappy couple of months. I’m so over wheelmen. My genetic test for mitochondrial myopathy came...

Does this mean I have MG

Hi guys, So I've been unwell for a while and Neuro considered MS. I had a hospital admission last month for Dysphagia and while there they did the ACHR antibody...

Borderline achr antibodies

Hey, new girl here. Long story short my gp text the other day to say the achr antibodies have come back "borderline" raised (reference range where I am is 0.0-0.59)...

My experience with University of Chicago neuromuscular clinic-seronegative friensly

I feel like I need a disclaimer or something similar:This is just reflecting on my journey for a diagnosis. UCM has made a HUGE impact on my life and I...

Diagnosis - New Symptoms?

Hello, I am so thankful for this forum. Your replies have been a tremendous help. I went to my neurology appointment today, and he immediately referred me to a bigger...

Suspect Myasthenia

I had a ct scan on my lungs because of a persistent cough. The scan showed atelectasis in both lungs. The pulmonary doctor said it was caused by muscle weakness...

Could I have MG?

Two weeks after receiving the COVID 19 booster dose, I began to feel dizzy and light-headed while walking. All of my blood work came back normal. I went to the...

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