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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Difference with ibuprofen

Has anyone noticed any symptom improvements with just ibuprofen or Advil/motrin. My ptosis noticeably improved with ibuprofen and some of my general weakness although subtle. I don't take it now...

MG flare or emergency while out of state or country?

Have you had an MG flare or emergency while out of state or country? How did you handle the situation? --- If not, have you had a discussion with your...

Side effects of medication

I was recently in the hospital with Acute Pancreatitis and a duodenal ulcer. I was in for five days and discharged. I was only home a week and went back...

MG Treated with Steroids Induced Type 2 Diabetes?

Have you been treated with steroids (corticosteroids) and eventually were diagnosed with type 2 diabetes? What dose were you on of the steroids, and for how long? --- "Statistics show...

Struggling with Constipation?

Do you struggle with constipation, whether MG or MG treatment-related or due to another cause? Have you found anything that helps resolve the discomfort and situation?...

Neonatal MG and precautions taken by birth team and throughout pregnancy

For those who have experienced the unique journey of giving birth while managing MG, could you share the precautions, if any, that your birth team took for the potential of...

Has anyone's doctors suggested these?

Hi all, recently my MG team have started bringing up a couple of things/ideas and I wondered if anyone had any experience with any of these. One was a temporary...

Unsuccessful Prednisone Taper

Has your doctor directed you to taper your prednisone, and your body rejected the withdrawal? --- At what point in the taper process did your body start showing signs of...

Myasthenia gravis and adverse reaction to the meningococcal vaccine?

Do you have Myasthenia gravis and had an adverse reaction to the meningococcal vaccine required before starting the MG treatments Ultomiris, Rystiggo, Zilbrysq, and Soliris? It's crucial to know that...

Zilbrysq (Zilucoplan) users and past users, how has your experience been with Zilbrysq?

Hi there, fellow Zilbrysq (Zilucoplan) users and past users! How has your experience been with Zilbrysq? Did you notice improvement with zilbrysq? If so, how long did it take to...

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