Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

slurring of speech

My husband was getting infusions and all of a sudden they switched him to a different med and in a few days...

Severe back pain during infusion

I have been taking Vyvgart for a year now and it has been working really well. However, during my last infusion, i...

Is anyone experiencing syncopal( fainting) episodes?

I have Myasthenia Gravis, I'm 10 months post Thymectomy, currently on IVIG 2 days every other week waiting on a clinical trial...

anti-musk positive on ELISA, negative on CBA

hi folks, i’m a new member of a club i wasn’t expecting to join. i’m in the middle of the diagnostic odyssey...

How is mestinon supposed to help?

Hi all, recently been diagnosed with mg through achr positive blood tests. I've been put on 60mg mestinon 3x a day and...

In remission

Hi there just to give the community an update on my condition. I was diagnosed with mg in 2020 and had a...

Has anybody heard of MG just dissapearing and no medications being taken or required not even Mestinon

MG just miraculously dissaperaing like remission...

Medication side effects

Are you currently taking any medication to manage your MG symptoms? If so, which are you taking? How long have you been...

Featured

Do You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?

Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered...

New treatment (experimental?) Rystiggo

rozanolixizumab (brand name RYSTIGGO) Has anyone had any experience with this? I’m not questioning the validity of the trial, simply any after...

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