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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Sudden movement risks

My symptoms appear to be mild most of the time until I make a sudden movement - either stopping, turning, reaching quickly, etc. It is then that I may fall...

Using foods that contain magnesium (e.g. basil)

Many myasthenia gravis websites tell us to avoid consuming magnesium because it can weaken muscles and potentially lead to a myasthenic crisis. However, I wondered whether that applied to foods...

Have all of the symptoms of MG but every test coming back negative so far!

I would greatly appreciate your help! I have been having symptoms of Generalised MG and am now in a wheelchair 90% of the time. I am off work, have been...

Hand swelling and tingling

I am in the middle of an MG Crisis. In 10 Days I will start my second series of Vyvgart. I am wondering if anyone has had hand swelling and...

Medications

Does anyone have experience with medications that exacerbate their condition? I have congenital myasthenia which is genetic and not auto immune, so my experience is probably a bit different than...

Ocular to Generalized Myasthenia Gravis

Commonly, the first symptoms of Myasthenia gravis experienced, and possibly the only MG symptoms for years, are double vision or drooping of the eyes, referred to as ocular MG, https://myasthenia-gravis.com/ocular...

Safe Cold products to use with gMG

I am coming down with a cold. My nose is running non-stop. What over the counter meds are safe and work with gMG?...

Plasma Replacement Therapy

Hi everyone Pete from the UK here - 70 years of age. I've had double vision since 2016 but recently developed ptosis. Finally been diagnosed with MG and now have...

Getting GP to take me seiously

We all know that GP face to face appointments are like gold dust but sometimes I really need to be seen any tips ?...

What is myasthenia gravis?

What are some tips to help me with myasthenia gravis?...

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