Refractory Myasthenia Gravis...Myasthenia gravis (MG) is an autoimmune condition in which the body mistakenly attacks itself. In MG, the way nerves and muscles communicate is affected. MG is treated with different drugs... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments4 comments
Reclaiming My Career After Myasthenia Gravis...In April of 2019, I officially quit. I stepped down from everything I was involved in. It felt like my aspirations were flushed down the drain as I left my... By Jessica Liao3 min readBookmark for laterReactions0reactionsComments1 comments
Accepting My Limitations Gave Me Freedom...However, before diagnosis, I found that no matter how much I got done in a day, I wasn’t comfortable, because more things would just end up on my plate... By Cristiano Del Giacco4 min readBookmark for laterReactions0reactionsComments7 comments
Diagnosis - New Symptoms?...Hello, I am so thankful for this forum. Your replies have been a tremendous help. I went to my neurology appointment today, and he immediately referred me to a bigger...Reactions0reactionsComments5 repliesSymptomsDiagnosis
Was Gaslighting Involved in Your Diagnosis Journey?...How long did this prolong your diagnosis? Were any misdiagnoses a result?...Reactions0reactionsComments95 repliesSymptomsDiagnosisAwareness
Living with Multiple Diagnoses...The diagnosis was so new and the disease made me feel so awful that I just assumed it was my body being defeated and the symptoms I was having... By Mallory San Nicolas3 min readBookmark for laterReactions0reactionsComments20 comments
How Do I Get Answers with MG?...Others have possibly been given a diagnosis, but are struggling with their treatment.... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments0 comments
How did your MG diagnosis affect you emotionally?...How did your MG diagnosis affect you emotionally? It can be incredibly challenging to cope with a diagnosis of Myasthenia Gravis (MG) emotionally....Reactions0reactionsComments0 repliesDiagnosisCopingDepression
How To Play Doctor ... Or Not...But in about 10 percent of the cases there isn’t a clear lab report to start the process of diagnosis.... By Juliana Texley4 min readBookmark for laterReactions0reactionsComments2 comments
The Challenges of Seronegative Myasthenia Gravis...Looking back, I had symptoms for at least 10 years prior to my diagnosis.... By Editorial Team 6 min readBookmark for laterReactions0reactionsComments32 comments
Myasthenia Gravis Does Not Stop Us From Making Memories...Since my myasthenia gravis (MG) diagnosis, I have endured my hands going weak when I use them intensely.... By Jodi Enders2 min readBookmark for laterReactions0reactionsComments3 comments
Community Views: What You Wish People Understood About Myasthenia Gravis...Loved ones – or even you – may not have heard of it before diagnosis.... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
Finding Hope in The Midst of a Pandemic...I had just found my footing again after being diagnosed with anti-MuSK+ myasthenia gravis (MG) the year prior.... By Jessica Liao3 min readBookmark for laterReactions0reactionsComments2 comments
The Struggle to Find Knowledgeable Physicians...For some, taking years for a diagnosis to be told, "it’s all in your head" by a physician, is inconceivable. In my opinion, it's irresponsible!... By Janice Koehn3 min readBookmark for laterReactions0reactionsComments0 comments
Going Through Testing for Myasthenia Gravis...I went through numerous tests, still with no diagnosis! I had blood work, chest x-rays, oxygen, and no conclusive diagnosis.... By Janice Koehn2 min readBookmark for laterReactions0reactionsComments0 comments
What Test(s) Were Used to Diagnose Your MG?...What tests did doctors run to diagnose your MG? Were imaging and bloodwork involved in your diagnosis?...Reactions0reactionsComments24 repliesSymptomsNewly DiagnosedDiagnosis
It's Been 31 Years Now...Luckily, it lasted long enough for the three doctors and four nurses (my wife, also) that were in the room to confirm the diagnosis of myasthenia gravis... By 1 min readBookmark for laterReactions0reactionsComments1 comments
Not Myasthenia......In one sense I feel fortunate that I received this diagnosis late in life.... By reneroman1 min readBookmark for laterReactions0reactionsComments6 comments
3 Ways to Support a Friend With Myasthenia Gravis...Being diagnosed with myasthenia gravis (MG) is scary. For me, suddenly facing this life-altering diagnosis was shocking.... By Jessica Liao3 min readBookmark for laterReactions0reactionsComments1 comments
