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Read conversations, start a discussion, and connect with others about myasthenia gravis.

MG and dropped head

Hi all! I wanted to ask if anyone has had any experience with a dropped head because of MG? I’ve only been on Mestinon for 2 weeks but see no...

MG with lupus sle

Was just diagnosed with lupus sle. Already so limited on with MG how do I manage meds and everything with lupus and rhumathoid arthritis? Also getting ready to go to...

Dramatic changes in MG symptoms for the better

I was diagnosed in December 2023 with GM at the time it was ocular with a continuous migrain rtype headache using Pyridostigmine and propranolol royally eliminated that . I then...

Does anyone else in your immediate family have MG?

After a five-year struggle, I was finally diagnosed in 2018 as Seronagative. My journey through a long list of unexplained symptoms help me spot the same issues in my father...

Lack of medical support

I live on Cape Cod Mass. and was diagnosed with MG in 2021. I went to a Neurologist and was given the normal cocktail of medications. I was on them...

Cellcept

I'm on 50 mg of prednisone plus 240 mg of mestinon daily. The prednisone is awful. Ive gained weight and i have the worse case of moon face ever. Can't...

Plasma Replacement Therapy

Hi everyone Pete from the UK here - 70 years of age. I've had double vision since 2016 but recently developed ptosis. Finally been diagnosed with MG and now have...

Being new in the community.

Hi, my name is Fleur I'm nineteen and I got officially diagnosed around a week ago. I've been really struggling currently and feeling a little lost. I've started mestinon 3...

Swelling of salivary glands and lymph glands

The doctors are confused about what is causing my salivary glands to not release saliva then I get painful sores in mouth and tongue sometimes my tongue can turn purple.The...

problem with difficulty urinating

good evening, I have been diagnosed with myasthenia gravis since 2009, for the last year I have difficulty urinating and I have a small flow, I am 32 years old...

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