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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Mestinon side effects

I can no longer eat any tomatoes and any foods or sauces with a tomato base. Has anyone else experienced this with Mestinon, and is there a simple remedy?...

General Myathenia Gravis

When I am ready to retire for the evening and I take off my shoes my right foot will curl to the left like it is paralyzed in that position...

MG taking Azathioprine

I was diagnosed with MG 7 years ago. Went thru the pyridostigmine - prednisone treatment for about 2 years. Celcept for about 1 year. Next 4 years took pyridostigmine only...

Myasthenia Gravis symptom?

I was diagnosed with myasthenia gravis about four years ago and it’s been only ocular. I have another symptom that is driving me crazy and I actually had surgery because...

MG and dropped head

Hi all! I wanted to ask if anyone has had any experience with a dropped head because of MG? I’ve only been on Mestinon for 2 weeks but see no...

MG with lupus sle

Was just diagnosed with lupus sle. Already so limited on with MG how do I manage meds and everything with lupus and rhumathoid arthritis? Also getting ready to go to...

Dramatic changes in MG symptoms for the better

I was diagnosed in December 2023 with GM at the time it was ocular with a continuous migrain rtype headache using Pyridostigmine and propranolol royally eliminated that . I then...

Does anyone else in your immediate family have MG?

After a five-year struggle, I was finally diagnosed in 2018 as Seronagative. My journey through a long list of unexplained symptoms help me spot the same issues in my father...

Lack of medical support

I live on Cape Cod Mass. and was diagnosed with MG in 2021. I went to a Neurologist and was given the normal cocktail of medications. I was on them...

Cellcept

I'm on 50 mg of prednisone plus 240 mg of mestinon daily. The prednisone is awful. Ive gained weight and i have the worse case of moon face ever. Can't...

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