General questions I was diagnosed years ago, as the years have past I could do less & less without losing my breathe. I'm on IVIG twice a week every other week. My...Reactions 0 reactions Comments1 repliesDiagnosisHealthcare Team
Do You Have MuSK or LRP4 Antibodies?Do you have MuSK or LRP4 antibodies? "Most people with MG have problems with acetylcholine receptors (AChR). However, other antibodies may cause MG, such as muscle-specific kinase (MuSK) and low-density...Reactions 0 reactions Comments5 repliesDiagnosisAwarenessTypes
Anyone else have MG and idiopathic transverse myelitisI've had idiopathic transverse myelitis (TM) for the past several years affecting the lower half of my body. Last month I was diagnosed with seropositive MG after developing weak lip...Reactions 0 reactions Comments3 repliesDiagnosisAutoimmune DiseasesNewly Diagnosed
ANA (Antinuclear Antibody) Test and Myasthenia GravisANA (Antinuclear Antibody) Test and Myasthenia gravis. ANA, antinuclear antibodies, is a type of autoantibody. "Autoantibodies are antibodies (immune proteins) that mistakenly target and react with a person's own tissues...Reactions 0 reactions Comments0 repliesAwarenessDiagnosisTypes
Myasthenia Flare?I currently have ocular myasthenia. Thursday I ended up at the ER. My mouth was moving weird, my vision impaired, difficulty swallowing and walking. When doing a CT Scan, I...Reactions 0 reactions Comments2 repliesDiagnosis
MG TerminologyI bet we all remember the first few years after being diagnosed with Myasthenia gravis and constantly finding new MG-related terms we were unfamiliar with. Many of us are still...Reactions 0 reactions Comments2 repliesNewly DiagnosedDiagnosisAwareness
TinnitusI have tinnitus which coincidentally started about the same time my other neurological issues did. Have others had this same problem and if so, has your neurologist said it was...Reactions 0 reactions Comments10 repliesSymptomsDiagnosis
Seronegative diagnosis and two rare genetic diseasesI’ve tried posting as a status and it it’s won’t go. It’s been a really crappy couple of months. I’m so over wheelmen. My genetic test for mitochondrial myopathy came...Reactions 0 reactions Comments1 repliesAutoimmune DiseasesCostDiagnosis
Does this mean I have MGHi guys, So I've been unwell for a while and Neuro considered MS. I had a hospital admission last month for Dysphagia and while there they did the ACHR antibody...Reactions 0 reactions Comments2 repliesDiagnosis
Borderline achr antibodiesHey, new girl here. Long story short my gp text the other day to say the achr antibodies have come back "borderline" raised (reference range where I am is 0.0-0.59)...Reactions 0 reactions Comments4 repliesGeneralized MGDiagnosis