Prednisone's Impact on My Self-Esteem...In a previous article, I talked about how prednisone caused me to have the horrible side effect of severe edema (swelling caused by fluid retention). My self-esteem was about as...reactions5comments
The Pros and Cons of Thymectomy...Thymectomy is often one of the first treatments doctors consider for many people with myasthenia gravis (MG). This surgical procedure removes the thymus, a small gland located near the breastbone...reactions1comment
Still Improving ...I have come a long way since my MG diagnosis in July 2020. I saw my specialist today. My eyelids were even and the twitching is reduced, double vision is...reactions1replyNewly Diagnosed
My Horrible Side Effect with Prednisone...I was put on prednisone because the Mestinon alone didn’t help, nor did the intravenous immune globulin (IVIG). The first time I was on prednisone, I was on a 20...reactions1comment
Managing Myasthenia Gravis Flares...Myasthenia gravis (MG) is a chronic (long-term) autoimmune disorder. MG is caused by antibodies attacking receptors in muscles. This destroys how nerves and muscles communicate, which results in muscle weakness...reactions32comments
The Most Expensive Prescription...Myasthenia gravis (MG) often creates sudden changes in lifestyle. People who had been constantly active find themselves trapped. Projects that would have filled long days can be exhausting, and the lure...reactionscomments
Cristiano Del Giacco...Cristiano was previously a pateint leader on Myasthenia-Gravis.com. Cristiano Del Giacco is a marketing professional, Brazilian Jiu Jitsu black belt, and biomedical science student. Cristiano was an athlete before his...
My Cooking Tips for Myasthenia Gravis...I have always cooked from scratch. Growing, harvesting, and preserving my own fruits and vegetables. In years past, that also included grinding my own grains for flour. Including acorn flour...reactions2comments
Exercising Again After My Diagnosis...Our first summer coming back to Tennessee from Colorado in 2007, we rented a house with a pool - we thoroughly enjoyed the pool and grilling area. It was a...reactions1comment
How Do I Connect with People Living with Myasthenia Gravis?...Navigating life with myasthenia gravis (MG) can be overwhelming, especially if you do not know others with the condition. It is hard to know where to turn when all the...reactionscomments
How do you deal with fatigue?...Hello everyone! I am curious and would like to hear about the different ways you deal with/ handle being fatigued. As for me I always seem to have a roller...reactions6repliesSide EffectsTips & Advice
Coping with Prednisone...With a diagnosis of myasthenia gravis comes medication. The most common treatment is Mestinon (pyridostigmine). This drug targets the defect in communication at the junction of the nerve and muscle...reactionscomments
My Strange and Uncommon Symptoms with Myasthenia Gravis...Most of us have the classic symptoms you could read in a textbook about myasthenia gravis. But, what about those strange symptoms no one or few have heard about or...reactions42comments
A Glimmer of Hope...In October of 2020, I was officially diagnosed with what my neurologist said, "for now we are calling it seronegative myasthenia gravis." He also believed there was something else going...reactions3comments
Mallory San Nicolas...Mallory has been living with myasthenia gravis since 2013 although it wasn’t until 2015 that she received a diagnosis. As a young mom of 2 boys, it was very challenging...
Preparing for Surgery When You Have Myasthenia Gravis...Medical Disclaimer: This content was created for generalized informational purposes only. This is not intended to be a substitute for professional medical advice, diagnosis, or treatment. People with myasthenia gravis...reactionscomments
Myasthenia Gravis and the Impact on My Job...When I first fell ill with myasthenia gravis, as for many, it was a very difficult time. Not only was I trying to adjust to all the changes this ugly...reactions3comments
Jazmin Clayton...Hello, Jazmin here. I was diagnosed with myasthenia gravis (MG) when I was 17 years old. I had just graduated high school and was starting my freshman year of college...
My Journey to Buy a Mobility Device...My journey to use mobility devices began when I could not get out and enjoy things like shopping, going to a park, or hiking. Although sometimes it is an issue...reactions1comment
Ashley Lujan...Ashley was previously an advocate on Myasthenia-Gravis.com. Hello! My name is Ashley, which is often just shortened to Ash. I'm a 31-year-old mom of 2 children aged 12 and 9...