Pillow Packin'...Years ago while undiagnosed, I was desperately looking for ways to help me cope. My muscles were so tired, weak, and hurt...reactions7comments
What Is Mental Health?...Mental health is the range of thoughts, emotions, and behaviors that affect your well-being and how you relate to others. Just like...
new medication...Looking for info on MH patients that are using Ultomaris...I understand this is a new medication for MG and looks very promising....thoughts?...reactions7repliesTreatment
MYOCLONUS ...Nightly and now at times during afternoon nap. When extremely short of breath, my ribs feel as if squeezing and aching pain...reactions10repliesGeneralized MGSleepSymptoms
Lessons Learned from IVIG Therapy for MG...When I was first diagnosed with myasthenia gravis (MG) in 2015, I was extremely underwhelmed by the number of treatment options. Somehow...reactions28comments
Sleep Disturbance...Not sure if many with MG have this or not but was wondering if sleep disturbances are common with MG. I am...reactions8repliesSymptoms
Myasthenia Gravis Diagnosis After the Age of 55: The Risks...In case you missed it, check out part 1 of this article, "A Myasthenia Gravis Diagnosis After the Age of 55." The...reactions1comment
Might it be MG?...Right, for the last 18 months I have experienced double vision (vertical) accompanied by a tightness over my head from temple to...reactions4repliesDiagnosis
Crisis Time...With a condition as rare as myasthenia gravis (MG), caregivers are often challenged to advocate for appropriate care. That can sometimes require...reactions10comments
Covid and Paxlovid...Hi just wondering if anyone has taken Paxlovid for Covid? Paxlovid is an anti viral treatment which has FDA emergency use authorization...reactions3repliesSide EffectsAwarenessHealthcare Team
Pain when swallowing....I know that a lot of us have difficulty swallowing. When I am overtired or it’s time for medication I can have...reactions8repliesSymptoms
My Experience with Prednisone...There aren’t many treatment options for myasthenia gravis (MG) so when we find one that actually works, it’s like hitting the lotto...reactions12comments
Struggling with myasthenia gravis ...Hello friends, It is a pleasure to meet you all. I have been diagnosed with MG since 2014. I have been struggling...reactions13repliesCoping
A Myasthenia Gravis Diagnosis After the Age of 55...I learned little about myasthenia gravis (MG) when I went through nursing school, graduating in 1972. However, one of the main things...reactions6comments
FeaturedVyvgart...Did anyone get the new Vyvart infusion yet? My dr wants me try to try it but had flair after 13 yrs...reactions51repliesAutoimmune DiseasesTreatment
Be Your Own Agent - or Theirs...There is a term educators use that seems simple, but is really pretty deep. It’s agency - the sense that what you...reactionscomments
Causes of Minor MG Flares and How to Deal with Them...Ever since my medication change to mycophenolate (CellCept), I’ve done quite well! I’ve had very minor issues since then and I’ve lost...reactions5comments
Myasthenia-gravis.com Giveaway Terms and Conditions...These Official Rules apply to any giveaway (or "Promotion") published on MYASTHENIA-GRAVIS.COM, a Health Union ("Health Union" or "We") owned and operated...reactionscomments
Having Myasthenia Gravis, COVID, and Pneumonia...While I realize that everyone's experience can be different, this is a personal account of my experience with COVID-19 and myasthenia gravis...reactions5comments
My MG...After reading all of your stories about MG, I am glad not to be the only one with this. I was diagnosed...reactions8comments
