Should I Wait? When I Know I Need Help and Just How Much...After having myasthenia gravis (MG) for almost 3 decades, I have gotten pretty good at knowing when I need to call my neurologist during a flare. For me, my first...reactions3comments
FDA Approves Vyvgart™ (efgartigimod) for Adults with Generalized Myasthenia Gravis...On December 17, 2021, the U.S. Food and Drug Administration (FDA) approved Vyvgart™ (efgartigimod) to treat generalized myasthenia gravis (gMG) in adults who test positive for the anti-acetylcholine receptor (AChR)...reactionscomments
My Introduction to MG...I am 71 years old and was enjoying my retirement and, up until now, was doing 4-6 hours of heavy gardening/exercise 6 days a week. My introduction to myasthenia gravis...reactions5comments
More Helpful Cooking Solutions for Myasthenia Gravis...In case you missed it, check out part 1 of this article, My Cooking Tips for Myasthenia Gravis. For those of us who eat and cook meat, standing over a...reactions1comment
Positive MUSK antibodies, followed by 2 negative tests, then enlarged thymus....I have had strange weakness symptoms on and off for about 10 months. My doctors checked for M.S and a few other things , all of which came back negative...reactions2repliesNewly DiagnosedGeneralized MGThymectomy
Obsessing About Early Christmas Decorating...My Christmas decorating obsession has kept me busy until a few days ago. Then, Christmas, birthday, and our anniversary came along. I usually have plenty of help from my husband...reactionscomments
My Journey with Diets and Learning to Enjoy Food Again...When I was first diagnosed with myasthenia gravis (MG), I started researching diets for autoimmune diseases. Due to my upbringing which valued holistic health, I believed my body was capable...reactions2comments
Seeing the Light - Or Not...They say that "hindsight is 20/20." In the case of my husband's myasthenia gravis (MG), his sudden loss of 20/20 vision should have been our first clue to the possibility...reactions2comments
Celebrating Christmas the Myasthenia and COVID Way...The biggest holidays of the year are peaking just around the corner. This will be our second Christmas dealing with COVID-19 during the holidays. My view on life is different...reactionscomments
it started out of the blue...Has anyone else just suddenly experienced a sensation that one of their hands had been disconnected or somehow unplugged? While the other hand started trembling? I was in an Ulta...reactions7repliesGeneralized MGMuscle WeaknessSymptoms
5 Ways to Gussy Up Mashed Potatoes (When Mashed Potatoes Are All You Can Eat)...Question: When is the worst time of year to have a myasthenia gravis (MG) flare up? Well, there isn’t really a good time for one, but for me, the winter...reactions1comment
The Importance of Self Care...The past 2 years have been extremely challenging for me and for my family. I was diagnosed with myasthenia gravis (MG) 27 years ago and there have been rough times...reactions3comments
MG Gave Me Lemons, So I Made Lemonade...Being diagnosed with myasthenia gravis (MG) can be a shock. Not only are you confronted by a condition you’ve never heard of before, but you’re also faced with change. Change...reactionscomments
UPDATE: Thymectomy surgery...I had my thymectomy surgery Dec 3rd and was released from the hospital the next day. It was a success. Oddly enough I am a lot more mobile than I...reactions21repliesThymectomySurgeryTreatment
Newly diagnosed with MG...Hello, I’ve only just been diagnosed with MG after months of drooping eyelid and severe double vision. I’m 35 years old and a lot of the symptoms seem to tie...reactions2repliesOcular MG
Reinventing Myself with Myasthenia Gravis...Ah, being alive and having the energy to do the things that you want to do! Or at least that's what we see portrayed on TV. But then again, TV...reactions3comments
Holidays After Myasthenia Gravis...The holidays are coming up and for someone with myasthenia gravis (MG), that may mean they look different than we might be used to. It took me several years to...reactions5comments
3 Ways to Support a Friend With Myasthenia Gravis...Being diagnosed with myasthenia gravis (MG) is scary. For me, suddenly facing this life-altering diagnosis was shocking. Having a strong support system was and is still crucial to my healing...reactions2comments
Maynard Johnson...Maynard was previously an advocate on Myasthenia-Gravis.com. I'm Maynard Johnson, a self-employed manufacturer’s representative for many different companies. I am also a 50-plus year student of myasthenia gravis (MG). As...
